Wednesday, August 5, 2009

100 Years





Gees - I almost forgot my way around this blog (it took awhile to remember how to even start a new post!). Having gotten sucked into Facebook and all the other ways to communicate online these days, my blog has really gotten dusty!

Had to share some more exciting news! We have been sooooooooooo blessed in receiving an opportunity to attend an intimate accoustic concert here in town by one of my favorite music groups/artists, Five For Fighting (aka: John Ondrasik)!!!!!!!!!!!! His song, "100 Years", may or may not be playing on my blog as you read this (I added it a long time ago, but lately sometimes it disappears) because it holds a special place in my memory of our time with Emma. We used this song, along with, "Somewhere Over the Rainbow" on our dvd slideshow that we played at Emma's memorial service. Here is the story as to how we chose that song...

I had attended a health seminar through work where the subject matter was "Dealing with Diversity in Health Care" or something like that. Anyway, one of the speakers was a mother and father who, while pregnant with a baby girl, learned that she had a serious, terminal condition and was not expected to live very long. I am not doing this family justice because I can not remember any names or even the condition this little girl had, but their message still rings loud and clear in my mind. The reason they were chosen to speak, given the subject matter, was that even though their daughter's days were numbered before she arrived, it meant so much to them to have health care providers treat her as they would any other patient - as if her life still mattered (which, we all know, of course it did!). Their daughter beat the odds and ended up living eight precious years. When they knew her time was drawing near, her siblings, as part of their healing, wanted to throw her one last birthday party and they decided to have it be her 100th birthday! That is why they played this song during their presentation. Of course, there was not a dry eye in the room and, as morbid as this sounds, I remember my co-worker and I commenting on how moving that song was and how we wanted it to play at our funerals someday. Little did I know what my future held...

So, fast forward to our story and you can probably guess that I didn't even have to think twice about what song we should play. Of all the preparations to be made, all that mattered to me (in my complete state of shock) about the whole process was the music. She was only here two short days and that song just reminds us all of how precious our time here really is. It was and continues to be a huge part in my healing. It always seems to play on the radio at all the right times and was even constantly blasted over the tv in a credit card commerical shortly there after (coincidentally, that was the same time they used the "Over the Rainbow" song for the black and white Rice Krispies ad - sniff!).

Anyway, I dont know what tonight has in store and I am certain that if given the chance to meet, John, the lead singer, I'd probably trip over my words and never be able to truly express to him what a gift he has given to us through his music, but hopefully I've been able to at least express that here.
***Addendum: Added 08/05/09 post show: obviously by the pictures, the show far exceeded my expectations (except that it was way too short!), but I was blessed to sit far too close, in fact, so close that John noticed I was crying (sorry for the distraction!). How could I help it when one of the 5 songs he played was "100 Years"! The worst part is that my tears were for different reasons than I'm sure what musicians/celebrities these days are used to. Anyway, I did get a chance to explain that to him, as he even commented on my tears (how embarrassing!). Bottom line, I wasn't deserving of such a great show, but I will forever treasure that experience! My only complaint is that Josh just missed capturing 'the hug' on film (the last picture was just seconds after the fact - bummer!)

Wednesday, March 11, 2009

This is sooooooooooo cool!!!

Wow - the time in between my posts seem to be getting longer and longer, but that's okay. Overall, I'm in a good place and don't need to blog through my grief as often as I used to. I've decided that now I want to maintain this site for the sole purpose of sharing it with my kids someday (if they so desire).

Anyway, I have to let out a great big "Aaaaaaaaaaaahhhhhhhhh".......... because I feel like I can finally release a huge sigh of relief as Josh and I just returned from a long overdue, much needed, adults only vacation to Mexico. I know times are tough, but I highly recommend that everyone take some "me time" like that, at least once a year! It was a good way to unwind after the hectic pace that the holidays and having both kids' birthdays in January brings to this household.

On to much more exciting news! I have to share this fantastic story of how Emma's life has inspired two amazing, caring people to take action in their own community. This was written to my mother-in-law by one of her childhood school mates:

"I thought the photo of Emma Kate was so beautiful and later when you sent me the link to Julie's web page, she mentioned how much they appreciated the pictures and what they meant to them. I looked at the website for NILMDTS and there was no photographer in this area - the closest was Cheyenne, which is 90 minutes away. Because of Julie's comments, I resolved to find someone here to "pay it forward". It's taken a long time, but I finally met someone I thought would be perfect. He is a grandfather, so wonderfully kind, gentle, compassionate, and generous. He had a full time job and has done photography on the side for years. A year or so ago he changed jobs, to one less demanding, and started working more on the photography. About six months ago I visited with him about NILMDTS and he said to send him the info. I emailed the website to him, asking only that he thoughtfully & prayerfully consider whether it was something he wanted to do. He decided to go forward with it after looking at the website and reading some of the parents comments.

Yesterday he emailed me to say he has completed the training and is in the process of contacting the hospitals in Wheatland, Torrington and Douglas, Wyoming. I asked if he needed a donation or any thing else I could do to help. Today he said he would like to have some knitted caps to be used in photos, that he can give to the parents ... did I know anyone who knits. Guess what?? I knit!!! I'm so happy & I already dug out the needles and yarn and will start making them right away. I hope they will never be used and I hope he is never called, but I'm thrilled to do it just in case.

I wanted you to know, because of your loss and Julie's remarks about the photos, there is now someone in this area who can be called if needed. I would not have known about the organization otherwise and because I care so deeply about what's happened to you, I resolved to find a way to make that happen. Thank you for sharing Emma's picture and the information about NILMDTS with me."

To Gloria and this fantastic photographer, Jerry:
Words can not express my gratitude. God bless you both!