there was a quote by a patient on house

"we can aspire to anything but we don't get it just because we want it."

I should make a t-shirt that says that

Af number something else

and I need to go shopping. I need to get some take along thomas stuff. The wooden trains are a big hit. I think she needs something we can take with us on the trips we'll be going on this year. Something in a case she can carry herself too. THat's take along. They have this wooden briefcase thing at Toys R us but I think it'd be too heavy for her. I'm not carrying it.
I'm trying ot figure out everything I need to do. I need to make a list. First on the list is to figure out where exactly the train table needs to go. It's in her room but it takes up too much of the floor space. That doesn't bug her but it bugs me. If she had a playroom upstairs that wouldn't matter. But, she doesn't. I can't push it up against the wall until she's taller b/c she's too short to reach all the way across the table to the other side to run the trains. Oh and she's hella funny. We took it upstairs this evening and she helped me rebuild the layout. Some of the tracks just stop but she doesnt care. She goes choo choo hop chgga choo choo. No idea where she go that from but it made me laugh. We also watched the one Thomas DVD we go ther 863683 times today. She sings the dang Thomas song too now. Horrible. OK IIIIIII watched it. She kept walking in circles around the tracks running the trains. I guess I coudl have shut it off but I knwo she was listening to it. She'd look up and say that train is gumpy or he is happy. That made me laugh too. Trains are cool. We even need more track adaptors. Hehe.

I've already taken down all of the Christmas stuff. Red looked kinda sad when Meredith and I started taking the ornaments off the tree. I said we have to put it away before we go dude. He said I know. The tree will go away on Wednesday with the trash. We'll be leaving for Atlanta and the wedding in not too long so we can't have a dry live tree in here acting as tinder for Survivor Man. I like the trains and don't want them to burn in this joint.

I hope everyone is having a good mini vacation. I like our fun new stuff. I wish I had gotten some people stuff though. We did get one set the day before Christmas but that doesn't count. It was just a small thing. BUt it's fun. I'm more addicted to this stuff than Meredith.

Tomorrow we will play Candyland. That should be rad.

Merry Christmas, Happy Yule, Happy Hanukkah etc

to everyone. And if you don't celebrate anything I hope you had a good day off of work.

Did I say I was having evil quad pain. Well, I was, it was from hitting the muscle with the meds. It's mostly gone.

My friend had this posted on her blog

so I copied her. Hugs to all of my fellow MWs especially those whose dudes are gone right now.

The Sailor's Christmas

Twas the night before Christmas, the ship was out steaming,
Sailors stood watch while others were dreaming.

They lived in a crowd with racks tight and small,
In a 80-man berthing, cramped one and all.

I had come down the stack with presents to give,
And to see inside just who might perhaps live.

I looked all about, a strange sight did I see,
No tinsel, no presents, not even a tree.

No stockings were hung, shined boots close at hand,
On the bulkhead hung pictures of a far distant land.

They had medals and badges and awards of all kind,
And a sober thought came into my mind.

For this place was different, so dark and so dreary,
I had found the house of a Sailor, at once I saw clearly.

A Sailor lay sleeping, silent and alone,
Curled up in a rack and dreaming of home.

The face was so gentle, the room squared away,
This was the United States Sailor today.

This was the hero I saw on TV,
Defending our country so we could be free.

I realized the families that I would visit this night,
Owed their lives to these Sailors lay willing to fight.

Soon round the world, the children would play,
And grownups would celebrate on Christmas Day.

They all enjoyed freedom each day of the year,
Because of the Sailor, like the one lying here.

I couldn't help wonder how many lay alone,
On a cold Christmas Eve on a sea, far from home.

The very thought brought a tear to my eye,
I dropped to my knees and started to cry.

The Sailor awakened and I heard a calm voice,
"Santa, don't cry, this life is my choice."

"Defending the seas all days of the year,
So others may live and be free with no fear."

I thought for a moment, what a difficult road,
To live a life guided by honor and code.

After all it's Christmas Eve and the ship's underway!
But freedom isn't free and it's sailors who pay.

One of my friend's needs P and PT

Can you send them towards Kansas City to Karen? Her dad died on Saturday after his second stroke. I'm sure this is a very hard time for her and her family.

Thanks!

I was in bed

granted not at the time I should have been but I was in bed. I layed there for 30 minutes before deciding to get up and get on the computer. There's no point in laying there when you can't shut your mind off.

I think that after I make the quote for Meredith's wall I'm going to sell my cricut and the cartridges I have. There's no point in keeping something I odn't use. It takes up a lot of space. Maybe I shoudl sell all of the scrap stuff that I don't use. I should also go thru all of my tools that I used ot make the dollhouses. That stuff I may just gift to someone form my old mini club. There are a few ladies there who woudl appreciate the stuff and take care of it. Or maybe I should keep all of it since one day, in theory, I will have time use it.

My thighs hurt. It's like I've done squats with too much weight pain. I haven't lifted weights. The pain radiates form both this weeks injection sites. I think I saw that before on MS World as a side affect someone else had on Copaxone. If tht's the way it's going ot be then this SUCKS.

Dude was sending me job links. I qualify for something good still even with a gap on my resume. Good thing I learned so much at Eagle-Picher. Occasional misery was useful. I'm wondering though, what do I do about the schedule Meredith has for school AND what do I do about the shakes I have. I can't write legibly and if the lab is cGMP that's a must. Maybe a higher dose of neurontin would help that? Must ask Dr S at the next appt.

Oh well. Off to search for nothing online.

When you're not sleeping...

and you're feeling kinda icky and you don't know what's going on with your body, and you stab yourself in various places and inject meds that itch/burn/leavewelts/etc... and you're just in an overall foul mood you'd think you'd try to do something about it. Well, I am. It's 9:30 and I'm upstairs in bed on Red's laptop. I't not even plugged in so when it goes to sleep I have to as well. Granted the battery lasts 5 hours or more but, I digress.

I noticed I skipped a few weeks on this thing. I actually didn't. I thought of things to type. None of them really felt like being typed, we had a committe meeting so I know this for a fact, so I just didn't do it. I figured since it was just random bitching it wasn't necessary. There's nothing new going on with my MS which is the point of this thing so I just didn't type anything. Funny b/c I bet most of what I've typed in the past few months has jack to do with it either. Then again it has something to do with me and I have MS so if you want to get technical it does. Whatever. My mind isn't working quite right here lately.

Tomorrow we're taking some stuff my mom sent to a playgroup friend fo rher sister's kid. She's 3 years older than Meredih so she'll liek this stuff. Sounds mean but really, it's not. I coudl dump it in the trash. Instead I found a kid who won't be getting much for Christmas and would LOVE this stuff so, there ya go. Also we're going to the NEX in Norfolk. We hardly ever go there now since we live even further away. Plus Dude isn't at that base now. Works for me. OHOH I did go there last weekend b/c Dude told me he saw that the Hobby Shop was having a Thomas sale so I went to see what they had. CAROUSEL!!! I've been looking for this damn thing in a good box for a long time. And I found the engine wash dealie that Meredith loves so much. I think she likes the dial you twist to make the trains go thru. She thinks it's cool. They were way cheaper on base and there's no tax PLUS there was 20% off. The old dudes in there are entertaining too so that works for me. I do think we'll , I mean SHE'LL need more track though. Extra track to do awesome layouts. Likely that can wait. I don't think she really cares. I do though. ;)

Oh and then we'll go to Ms E's. I have something for her tre that ought to make her laugh. I think she could use a good laugh.

That is all.

It bugs me

when people assume they know me b/c they've met me a few times. Try being my neighbor, or in the FRG with me, or going to school with me, or working with me or even being in my playgroup or music/art class. You don't know me and don't assume you do.

Maybe I'm seriously overreacting. Maybe I need to go to bed.

No I think it's like the chick who I saw with Zoe today said after I asked her how she felt when people think that b/c she looks ok she is ok, "You don't know me don't even pretend that you do." She's right.

YOU DON'T KNOW ME DON'T EVEN PRETEND THAT YOU DO.

It's amazing what you can learn about someone that you think you have pegged when you ASK A QUESTION INSTEAD OF ASSUMING YOU ALREADY KNOW THE ANSWER.

Off to bed.

Dude sent me this quote

and it made me laugh.

"If it's stupid but it works, it isn't stupid." Murphy's Law of Combat Ops

random things and stuff

I noticed today that I am still losing weight even though I'm a major gym slacker. I'm still good about what I eat, even though I'm bad about WHEN I eat so what's that all about? I'm not making time for the gym. I guess right now I just don't want to do it. It made me feel better, stronger and better, but I just don't feel like it. Gilad keeps calling my name. I should get to that at least. But I don't feeeeeeel like it.

My assigned Rebif nurse called today when we were on our way to art class. She's like so one more month then maybe you'll come back? I didn't leave YOU lady come on now. I do think I'll go back to Rebif. I know how to deal with those side affects, I know everything about it so I may as well stick with it. That's a whole thing though. It's out of my system so I'll need to titrate back up to the normal dose again. When I started the Copaxone I was just about reaching the level where it does the most good now when I reach that level with Copaxone I'll be switching again. It is what it is. I'll be glad to be on a different med when we go to the family reunion though. Less syringes to carry with me. (That's not negative, it;s realistic) A beach reunion in June will be a whole other thing to deal with. I don't think I'm going to have too much fun since the coolest place is in the water and water and I aren't friends. I may hang out with Grandma O in her room.

Speaking of trips, we'll be going to Atlanta to see Uncle Joe then driving to a wedding in Alabama in January. I think it might be smart to carry 2 or 3 extra syringes in case we are stalled for some odd reason. We're driving but still.

Wednesday I'm going to see Zoe again. She has another "client", or whatever she calls us, that has Lyme Disease and she wants us to meet. Apparently we have similar attitudes and similar issues. It should be interesting. She mentioned this a long time ago to me and to this chick and we both agreed. I wonder if this is commonplace. It can't be a bad thing to meet someone who is similar in personality and going thru similar circumstances. We shall see. PS this will be the third installment of leave Meredith at Ms D's house while I/we go do something.

Why am I up at 1:14. Can't sleep. I made a deal with myself that I'm going to start going to bed at 11 at the latest. All I do is lay there and flip over like 98569826 times. That doesn't work for the other people in my bed. Red needs to sleep b/c he gets up before dawn cracks when he's actually home a night and the small girl is CRANKY if she doesn't sleep. Who am I kidding, we're ALLLLLLLLLLL cranky if we don't sleep.

Tomorrow we're taking the dude his lunch b/c there's nothing here for him. Then we're going to the NEX and the commissary. At the good base. I don't like the backwards one that's not far from us.

OK. Off to find something to entertain me on the internet.

Pathetic...

It's been a long long time since I've written anything.

The TTC thing makes me ill. I have some kind of guilt complex thing that is making me want to stay on this med and go let them run tests on me. Fortunately Red said no. He's a smart guy. SO, we have one more cycle I think of Copaxone left and that's it.

I'm trying to figure out which med I need to switch to. Go back to Rebif? Go to Betaseron? I'm wondering if I only needed to be aggressive right after I was diagnosed. If that's not the case then it's back to Rebif. Then again I know someone who was on Betaseron for years, it's been around for YEARS and it's the most tested of all the drugs. Not sure what I'm going to do. I know what Rebif does to me and I know how to manage it. My liver doesn't hate it either.

Christmas is coming sooooon and I'm excited for the Trains! I may not sleep on Christmas Eve. I do have to remember to not push the buttons or play the music on any of the musical things. For sure the small girl will hear it and wake up.

SHe's so funny. She's seen Santa 3 times. 3 different Santas and she's been excited every time. I wonder if that'll confuse her when she's older. She's so cute yelling HIIII SANTAAAA...although the word she uses for Santa doesn't necessarily sound like Santa. Here's one shot from Red's command children's party tonight (she doesn't have on shoes b/c it was at a bounce house place just fyi). They were looking for whatever gift she was going to get. It was a Care Bear, the one with an attitude. I told her "See Meredith it has a bad attitude like Mommy" Some lady laughed at me. Whatever. It's true.

AF number something or other again

Tired of AF. Tired of it.

It's wierd when someone who doesn't know your business tells you they're praying for you to not have AF.

Happy Thanksgiving

We stayed home and I cooked. It was good food but now we have leftovers for 5 days. Of breakfast and lunch. And I didn't even buy a big ole honkin turkey.

I started painting Meredith's room. It's not what I was going to do at first but I like it so far and so does Meredith. I may need roman shades for the windows. Curtains might be too much.

That's all for now.

I had an enlightening convo..

with a friend. I asked her about her family and what will happen when her youngest goes to full time real school. Will both parents go back to work full time? She said probably not. I asked why. What she told me made all kinds of sense. What's to say that Red and I will be able to have jobs where one of us is home in the am and one is home in the pm? What about summers and other school holidays? A whole new set of things to consider that I really hadn't.

I did get new glasses. They just aren't here yet. They had to order them. When they're on my face I'll take a picture. Really I will not liek the time I said I'd take a picture of my haircut and never did. I need a new haircut by the way.

I got the Copaxone refill. I had heard about new, smaller needles, AND I GOT THEM THIS TIME!! They really do help. The med still sucks but the needle is so much better. YAYAY!

Who'd have thunk I'd be excited over needles?

My poor eyes...

I just really need new glasses. That's what the eye doctor said anyway. So, when I get them if I still have issues can I bring him the pain? Meredith will show me how. She knows how. Be afraid, be very afraid.

We're going to stay home for Thanksgiving. Red now has the day off so instead of all of us going to Ms. E's we're staying home and cooking stuff for ourselves. We'll see how that goes.

Tired. SO, what else is new.

So I had my eye testing appt..

and it looks like the issues I am having with my vision are likely not related to my optic nerve. That's good. The bad thing is that my poor eyeballs are just wonky. I really need to make an eye appt now. I can't stand this not seeing correctly thing. It's worse than when I got bifocals and had ot learn to see thru them.

I did notice one other noteworthy thing. The left side of my upper back is numb. I needed to scratch. I had just filed my nails so they were pointy. I itched the crap out of myself...with itch relief but I shoudl have hurt myself and I didn't feel it. That's wierd. Not a good wierd.

Driving to the doctor this am I felt kinda good. I got up early got dressed, ate my breakfast, charged my phone and left. I liked driving in traffic, I liked sitting in tunnel traffic. I felt like I had somewhere to be and something to do. That almost sounds insane.

I also went and talked with Zoe today. I really should do that more often. The last time was about 3 months ago. I told her I needed to get back into that habit. She really does help me to think clearly. She said, "you should be a therapist or social worker." She said I have interesting insight and a good, I forget the word, something when it comes to dealing with situations that could be stressful. I said I had to learn to be that way. Unfortunately I have had a lot of practice.

I've started on the wierdness that I have in my head for Meredith's walls. I like the butterflys but not the swirls I added to make it look like they're flying. She likes it. She's 2. What does that say? I also decided to stripe one wall. Stripes are assholes.

She's been messing with the partially finished dollhouse on the kitchen table. I think she wants it to play with. I might make her one to play with sooner than I thought. She might be able to deal with a wooden house that's more fragile than the Little People house she has. Mostly b/c all she does is set the penguins or the other little animals she has in there and make them look out of the windows and talk to each other. It's kinda funny really.

That is all.

Don't go to the Mall on Saturday

No duh right? Well,see, it's like this. We had about 2 hours before dinner, we had already played outside and done laundry and everythig else we needed to do. So I said hey, you need new shoes little girl lets go look. And while we're at it we may as well call and see what size the one niece wears and get her something else for Christmas since we got more stuff for her brother and "that's not fair". So off we go. Meredith woudln't even get out of the stroller there were so many people.

Usually at this Mall there's no one but us and the 10 other mothers with their kids. But, that's on a Tuesday morning.

Never again.

We did get shoes and a gift though. And a little skirt from Baby Gap. Cute. ANd some hair bows from Gymboree.

By the way who is this "we" person. IIIIIIIIIII did all of those things except play outside by myself. Maybe I'm counting all the little bugs that live on all of us. Gross but true.

Oh and if the economy is so bad where did all these people get money from? Or maybe they all paid by credit card? Who knows, but there was some serious shopping going on.

And for those of you who are wondering, yes, I did walk allllll the way around to avoid Santa. Don't laugh. It's normal for me.

Nothing new on the health front. I have an appt Wednesday morning for all the vision stuff. We shall see. Oh and I'm so tired it's not even funny. I'm about to go upstairs, take a shower, get in bed and watch the Dallas Cowboy Cheerleaders show then go to sleep. Horrible.

Oh and Gertrude, you're still hot even with screwed up hair. ;)

Things that are happening...a list

1. I started painting the butterflys and stuff on Meredith's wall. She likes it so far.
2. Having a new floor rocks but solid floors really show dirt...like little leaves and crap that get tracked in even though we're a no shoe household.
3. I am very annoyed when people think sending me stuff with the tags on will make it so that I think they're cool since they sent money. No one needs a ukulele or anything else thats useless. I'm not impressed. Also, when this person keeps bothering me and half whining crying over e-mail and texts it makes me want to change my number and change the e-mail I've had for almost 20 years to avoid them. Not working get a clue.
4. I need to find fill dirt and sod. I really do. Most garden centers around this joint will only order sod for you if you need a whole pallet. I don't need a whole pallet I only need MAYBE 25 sq ft.
5. I went to the neurologist today

• I am going to be on Copaxone thru the winter then switch to something else if necessary
• something else may not be Rebif
• I have to make an appt for another VER and a Visual Field test b/c of my eye issues
• I got a neurontin refill and more blood work
• my old blood work doesn't show any liver damage from my old meds
• and I also got a disc of my MRIs. When I figure out how to copy frames I'll share a picture of my brain.
• oh and he said I don't need another MRI until next year...if I don't have any poopy issues

I was listening to Radiohead when I was painting. Kid A. If I could imbed the whole cd onto my blog I would b/c the whole dang thing fits the way things are right now. I like it a lot.

We went outside to play today

because it was so nice. It's good to have a fairly mild sunny day every so often. We walked around every cul de sac and down near the water. Passed some old people throwing their yard waste in the woods (we saw you old ladies), picked up some fab leaves to glue to paper and color with markers, Meredith drew with chalk and played with the bubble mower. It was a good day. I have to be sure she has good pockets b/c we're going to go to the park. No more acorns (she picks these up when we go get the mail) or leaves, we have enough of those, but maybe something else.

I haven't been feeling all that hot. I'm glad my appt is soon b/c I can't figure out wth is going on. I wonder if I should make a normal eye appt or if they'll make a referral for a wonky one for me.

Tired. Going to bed.

Another AF

This one is early. We'll see how it goes.

We voted...

did you?

If you did I hope you did your research and voted for the candidate that will do what's right for you, your family and our country IYO. That's all any of us can do.

If you didn't and you had the option to don't complain about anything the next administration does. You didn't try to make your opinion heard so you don't get to complain.

Happy Halloween!

We went to 3 cul de sacs and got a lot of candy for Red to take to work tomorrow. Not keeping anything but lolipops here. One a day is all she gets. Maybe.

She only got scared one time. I would have been scared too if I saw a fake gorilla sitting on a bench. Wait, I did see that. It was questionable. I thought it was going to get up. Red said that too. If he had gotten up I'd have kicked him in the nuts. You don't scare a little kid like that.

It's almost time fo rmy 6 month appt

I think it's 6 months. Yeah. Whatever. It'll be interesting.

Lot's of stuff going on right now. I can't even think straight to type it all out. I will though. Just not today.

Officious...

is my new favorite word. House is a rad show.

Depth perception

that's another area where I am lacking. I've noticed that I'm getting worse at parking. The tail end of the car is always out way further than necessary. I think I've pulled all the way in but I am sorely mistaken. I have to mention that too when I go to the doctor.

We were just a Olive Garden for dinner. We all got water. Didn't taste Meredith's and couldn't figure out why she wouldn't drink it. Then, Red drank from her cup. It was SPRITE. Now I know not everyone thinks that's a big deal but she doesn't get soda. We don't give her too much artificial crap and SODA is at the TOP of the list. The lady is like I swear it was water. Yeah, it miraculously turned into Sprite. Moron. She got her water and all was well. Stupid lady.

I have a snotty head

and this is day 2 of it. I also have ear crap that hurts. Sucks butthole. We went to a birthday party last Friday where ha;f the kids were coughing and snotty. Meredith was kinda sick for one day, not even a whole day. I'm the lucky one. I wonder if the Rebif made my immune system that bad. Interferons do that apparently. POS. I stil lliek it better than this Copaxone.

I have to remember to ask the neuro for other injection sites b/c my legs and my arms don't even work for the lowest setting on the autoinjector. I guess that's what happens when you lift weights. So 4 of my 7 injection sites are guaranteed to bruise, hurt and be evil. That's not good. The Shared Solutions nurse called again just to check on me and said for sure to ask the neuro for different injection sites b/c they could only recommend what has been tested in clinical trials. I have to remember to wear a skirt so he can see what it's doing to my thighs. It's really kind of gross. You know how you flex your quad and see the outline of the muscle? Mine looks like muscle with parasites b/c there are these nasty welts on top of my muscle. If I do a Popeye flex of my arm you see the same things on my triceps. POS welts.

That is all.

We finished the floor...

and now have to wait a few days to seal it. It's in between buffing stages in these pictures so it's still slightly hazy but it's sooo much better than before. I think we did an excellent job. If you've been over here before you should really come see the difference.

There's during and after shots Red took. Oh and a dancing girl picture.

I have my next neuro appt. I think he's going to send me for an MRI b/c it's the 6 month anniversary here pretty soon. 6 months. It seems like it's been so much longer. Oh well, off to watch Amazing Race.

so we're tiling...

and have decided this is not the time to send stink do to school. I like the school, I like her teachers, I like the people in charge. It's just not time yet. BUT, that means I have to find more fo rher to do. A dance class or maybe cheerleading. If she were in ballet and they let her wear a tutu she'd think that was hella cool. Also at her music school, they have art for younger kids. She likes art. And Mrs. Virginia, her teacher at music, does private lessons for piano and crap for little kids. Maybe that too.

I forget what else I was going to say. I'm just waiting for the second batch of thin set to set then I'm gone again. BYE!

we went to the McCain Palin rally today

and I got interviewed a few times. I doubt any of them are printed or put on the news b/c I didn't tote the line of Palin makes me feel like my daughter can do anything and I said I vote my pocket. Nothing the news wants to hear but I told the truth. One dude asked me what I thought of the polls so far and asked if they worried me. I said no b/c there's no guarantee that people tell the truth when talking to pollsters. This is the same guy who asked who my family is voting for and if I would have voted for Hillary or Edwards instead. Makes it very clear to me that they keep asking questions to get the story they want and if you don't give it to them they move on. Makes me laugh.

WAIT I DID GET ON THE NEWS!!! I SAW IT AND SO DID ONE OTHER PERSON THAT I KNOW OF B/C SHE TEXTED ME!! I'll link it when I find it...if they put it on the website. one link w/ no video yet.

I do have pictures but the psp is dead b/c the desktop is now clear of everything so I can't zoom in otherwise I'd show a picture. Meredith was really good and we had to stand for like 4 hours. YAYAYAY Meredith!

PS when you don't take your meds you really notice which parts go numb. My feet go numb. They didn't even hurt. I couldn't feel them.

We're big fans of chalking the driveway

so today I took pictures. The sky also looked pretty this evening before we went in so we took pictures. It gets dark fast now. I like that. The cool weather is officially coming for a long visit. See the body tracings? She draws in her face, hair and shoes. Sometimes she colors her pants and shirt. Normally she ignores them and focuses on the smaller details. It's funny. She's serious about the details of her eye, eye, nose, mouth, hair, shoe, and shoe. That's what she says as she fills in each thing.

Oh and yesterday we got fake pumpkins and painted them. Poor Meredith had morning hair in the shots. She doesn't care. Neither do I. She was very serious while she was painting.

There's nothing any different happening. Besides the what si now normal numbness tingling in the new places.

We went to the Children's Festival in Norfolk today. It was pretty fun. Of course I forgot the camera.

I tried to format this dang thing twice. It doesn't like it so screw it.

AF # something or other

whatever. Just logging the date for the next AF. The weird back tingling thing is there all the time now just fyi. Oh and I got 3 new bushes to replace the ones I dug out. A gardenia and 2 camellias. The c one could be spelled incorrectly but who cares.

Oh and we're playing guitar hero. The other night we played parcheesi and then life. It's fun to play games with Red.

we also went to the Zoo..

on Sunday. It was Military free day. We go very year on that day but thia is the first time Red was here so he went with us. She made every animal noise she knew. It was kinda fun. We also let her walk long enough where she actually ASKED to ride in the stroller.

I like giraffes

paint pictures..

One during the day and one at night. I like the color. It's like sagey grey green. Next to the clock will be some shelves with this thing I'm working on on them. I'll share when I'm done.

Painting is done...

I also dug out 3 bushes and cut down 2 little trees. Actually my neighbor Penny cut the trees down with her chainsaw b/c she's nutty I just made them small enough bundle so the garbage man woudl take them away.

I had alcheehaul today. Margarita. I didn't drink it all and she nursed then went to bed long before anything might have gotten to her. That's the first time in like 4 years. Longggg time.

I'll take a picture of the living room tonight and then post pictures tomorrow. Yes I will.

I'm tired. My back is tingly. The shots suck. I need to schedule my next neuro appt. It's been 6 months I think so I may be due for an MRI. I think there are more active lesions. Let's hope I'm wrong.

I got more paint...

time for the living room to turn a rad shade of green.

Also um nothing. Nothing is any different.

So, to get back to business

The Shared Solutions people keep calling me since the reaction I had. I still hate this med still have welts and bruises and now I'm scared that it's going to happen again. I have been having this wierd tingling thing going up my spine the past few days. That's bothering me. Also my outside two fingers on my right hand are asleep. They flop around and are pretty much useless.

Working out regularly is making me feel strong. I like feeling like that.

That is all.

2008 MS Walk

It was a good time although it was a little too warm for my liking. I appreciate all of my friends who came. I'd post a group photo but I have to ask everyone if it's ok first. They were a bit unorganized, didn't have the team totals and had the nerve to tell some of my friends that they couldn't walk b/c they had no donations....BS TOTAL BS, but hey whatever. The chick will get a letter from me about it. I thought the purpose was SUPPORT and fundraising came second. F-worders.

Anyway, here are a few pictures. If you see yourself HI. Notice it's a half crowd shot. ;) Oh and one of dudester.

A Few Air Show Pictures

It was cool. I'm bad at photography but I got some decent ones.

Today was day 2 of my shot...

since I got a 5 day reprieve from the neuro. It felt good to not do it for 5 days. I was kinda scared to do it again but so far so good. No more scary crap just normal bruising and stuff.

I haven't been online much lately. I have a lot to do. The internet is a super duper time waster for me. I get sucked in and I can't get out. Kinda like quicksand. Heroes is on again, Survivor, Grey's Anatomy, Amazing Race. Everything rad is coming back on. TV rocks b/c I can do 10,000 things all while watching my shows. TV is hella rad.

So far the workouts are going well. My shoulders hurt so much fromlifting but I'll get over it. Yesterdya I was CRAVING Mike n Ike's. So, super dude and dudester and I walked to 7-11 for some. a little over 3 miles ot get candy. Then I only ate one serving. I think I burned more than I ate. Working out makes me feel stronger. That's what I need.

My sister was here...

the desktop died, can't find the external hardrive, tired, arms hurt from the circut workout, tired, been off meds for 5 days which is grand, went to the air show which was rad, walked a lot for exercise, doing well with my food log although I don't eat enough during the day so I'm starved at night, my mom thinks she can buy things to apologize as if that'sgood enough.

That's been the past week.

Tired.

A very interesting day

I met with my trainer today. She did all sorts of tests to determine where we shoudl start and where we shoudl head. I'm in agreement with her. Before she said everything I said it. She said if you know what you need why aren't you doing it? I replied that I don't know how to do it with my new everything. I don't want to hurt myself so I'm getting help...plus, I'm lazy. ;)

That whole thing motivated me so when I went to the commissary today I went alone and I read the back of everything I'm going ot be eating. I have to keep a food diary to make sure I'm eating right so I'm going to do it right.

I PLANNNNNED on doing it right then we sat down to dinner. I grilled chicken. I made myself snap peas and dude and doodster has pasta and corn. I sat down to the table. We start to eat while I'm warming my arm for my shot. I do my shot, Dude and Dooster count to ten like normal. It doesn't sting BUT then I start to feel wierd. I can't breathe, I have wierd chest/upper abdomen/back wierdness, I'm feeling hot. Then my back starts to hurt and I can't sit in the chair so I lay on the ground. Laying on the ground hurts next. Red is like what do I do can I help you? The heat pad thing I was using is from Shared Solutions so I told him to call the number on it and ask for a nurse. So he does. Meanwhile Meredith is going Mom Mama Mom? I say get her a cookie. So he does and that keeps her quiet for a bit so he can talk on the phone.

I knew what was happening. It's a wierdo reaction some people have to the meds. Good thing I read huh? I was feeling like poop seriously and wondering what the helllll would I have done if Red weren't home? So I had him ask if it was ok to change my shot times according to his schedule. When he's not home I don't do the injection until he gets home. I can't take chances. They said they don't recommend taking the shot at random times but you can do it. Yeah uh, I"m going to do it.

So now I still feel like crap. I laid on the couch for the past 3 hours then got up and took a shower and am now laying in bed on the laptop. They said by the morning I should be fine. POS I had better be.

The good thing is that the shot didn't hurt.

It's Monday

And I got new curtains to match the new duvet I got for our bedroom. I like it. It's garnety and the curtains are garnety and goldy plaid. Anyone see a trend? FSU colors that's right. It looks cool though.

I tried my thigh shots with the autoinjector dialed down to a 4 so I wouldn't bruise from hitting the muscle but the med would still get into the subcutaneous layer. Yeah. I still get big ole welts. I need to call and ask if I can skip my thighs and if I can how exactly do I do 7 shots in 7 different areas when I only have 5 areas left to choose from and those areas all have welts too. Not supposed to shoot into welts. Whatever.

Tomorrow I'm going to see the trainer at noon after we go see this chick from Red's old ship get pinned. She made Chief and I'm proud of her. She wanted it so badly. Good going Palindronelastname Chick!

We're going ot go to the Air Show on Saturday since my sister is coming. It's not supposed ot get hotter than 77. That's perfect weather to be outside in. She goes so I should bring jeans and a sweater? I said for you maybe but we'll all have on shorts!

My friend who lives in Dallas had her second baby girl this week. Everyone send speedy recovery vibes to her and my other friend who had her second boy about 2 weeks ago. All these people popping out second babies. They're mad I tell ya! ;)

we went to the fire dept today

with one of our playgroups. It was really fun. Meredith did have issues when the dude got fully dressed and put his hat on but when he took it off she stopped crying. It's really a good idea to let kids see how they look irl all dressed up. I think it might scare me too if I were 2.

I'm excited to be on a work out plan. Maybe it'll make me feel better.

My sister is coming next Thursday. Did I say that? It could potentially be a fun trip. We shall see
Also, we're switching from COX cable to FIOS. BYE BYE LOSER COX. We also won't have a home phone so unless you have our cell numbers you're out of luck. ;)

She's going to go to

POP Preschool. I like it. She won't be going until she's almost 30 months b/c there's too many little people in the class I want her in but I'll wait. That just a few more months. I think she'll like it. I saw it but she hasn't. I'll have to arrange to take her when her class is there so she can meet the teachers and see her room. I don't want to drop her off at a strange place and leave her. I don't think that'll fly. Of it's MWF 9-12 so I can go to the gym, go to appts, scrapbook, read, mop the floor without saying Meredith Meredith Meredith 50 times. Just stuff. We have to ether drop music or switch classes b/c our class is W but oh well. This will help her much more than just music. It's a real school without Mama.

What else, oh I went to get a trainer at the gym. I have to have Dr S sign a release with all this info before I can start but I'm excited. Fit TV and Gilad isn't cutting it. I need strength training again. Maybe that'll help me.

We went to the Montessori

and I liked it BUT the director asked me a simple question. "Which schools have you looked at for her besides us?" Simple enough question right? I told her then she began to trash each of them. She's not going to this Montessori. That was terribly unprofessional. OH and she gave Meredith a box of markers that weren't washable to color with. Nice marks on her shirt. 20 Mule Team Borax had better get it out. That was half dumb on my part though for allowing it.

I am putting up my fab blinds right? Well the little girl is in her room b/c she's being evil. She figured out how to get the screws out of the wall around the plate where the cable plug in thingy is. WHO DOES THAT?

Here is her guilty look near the plug thing. up top I guess.

My left hand keeps going numb but painfully numb not like normal numb. POS.

The Kurt Warner Kurse

I had to spell it with a K b/c it looked better. If you follow football you know that Tom Brady has a torn acl. I drafted him for my fantasy team. Damn man played one fricking quarter and he's out for the year. GRRRRRRRREAT! And that's not Tony the Tiger speak. See what happens when year after year I stick with Kurt Warner? I switch and I get another lame duck. NOw I need to find someone else. POS.

I think the shots are starting to hurt more. I can't hardly get the needle in without totally feeling it, the meds hurt like a beesnitch when they start to absorb and the welts are bigger, more red and itchier. All bad things.

Today I went to this wierd "we have everything you don't need" store while Red was getting a massage. It's ok, I hate massages and he likes them so it works fo rme. I got 4 mini blinds, 2 42 inches wide and 2 71 inches wide for $14.00. Yes I said that. The ones that were here are yucky even after I took them down and soaked them in the bath. $14. That's a deal to me. I also got a wrought iron star, I have several for some odd reason I like them, and 3 bedazzeled fish for Meredith's bathroom. They're green and super cute.

Still no hair photo. I need to take one during the day.

ONe more thing. My sister got a ticket to come here during the air show at one of the local bases. I was super excited b/c I like her mostly. Then I thought, she says Mom follows her everywhere. Granted she sent me her ticket info but I swear if my Mom is with her when I go pick her up from the airport I'm going ot turn around and come back home as if I didn't see her. Red told me a line I should text that basically says don't go there but in a nice way. I really think my Mom would do that. She's asking for something evil to happen. She really, truly is. I think they think either I won't be that rude, as if flying half way cross country to someone's house uninvited when they don't even alk to you isn't rude, or I'll just let it fly. Nope.

I'm on the hunt

for rad Thomas the Tank Engine stuff. That's what Meredith is getting for Christmas. Then I was looking for an underbed train table. I found several that I looked veryyyyy closely at. I CAN BUILD IT!! It's not hard to make a train table then I can paint grass or something on it. Super rad.

The rain made it so that I will not take a picture of my new hair today. It's not all that new, just shorter and not so crappy.

I'm sitting here minding my own business watching Red watch FSU play a game that's taking too long b/c they kept getting delayed b/c f the weather. He gets texts about the game he's watching and he's online chatting about the game he's watching with other people who are watching it. Wierdo.

I still hate copaxone.

I forgot one thing that I just remembered...

Meredith is so kind hearted that she offered me a booger today. How sweet is that? Sadly, I had to turn her offer down. :)

nothing exciting happening...

I bought a lot of stuff today. Stuff I've been looking for for certain areas of this joint. Tomorrow I'll do it again except I have to stop relatively early to let the Molly chick deal with my hair. I'll post a picture tomorrow if it doesn't suck too hard. I should take a before and after shot. I'll take a shot now in case I forget. This is after a long day and a shower so it's especially hardcore. NO I'm not showing it just now.

Stinky Do do and has given up the naps. Poor girl hardly makes it thru the day but she's determined. More power to her. IF we're home and I need to do stuff I still put her in her room. As long as she has water, baby Da and a few books from downstairs she doesn't really care too much.

My super rad friend Short D made her own page off of my MS walk thing about her walking and me. It made me smile and feel girl feelings...the kind girls feel for their super rad freinds. She rocks just fyi.

I told on the nurse today. HAHA on her. They were all stuttering when I said I wished I didn't have to be on copaxone b/c even though rebif made me sick I liked it better. I'll be back on it eventually. Watch.

Um nothing new. I may have to skip the left arm shot b/c the welt is just too big and you're not supposed to shoot into an injured area. Yeah right. WTF am I supposed ot do when they are all like that?

AF #3

I think. It's not like any I've ever had. It's mostly nonexistant. Wierd. By now I'd be well into my yucky go potty fast for at least one day thing.

I'm really hating copaxone. No one wants to feel bruised and sore and look like it too. I'd almost rather take the make you feel like you have the flu all the dang time lower your immunity rebif. Oh well.

I was going to write more but I forgot what I was going to write. One good thing, I have gotten into a thing with the shots. Each day I know where the next goes. maybe b/c it gos to the body part closest to the biggest welt. POS welts.

I've been in the house for 2 straight days

tomorrow I'm going someplace. Anyplace. Because this is ridiculas.

I noticed that when I do a shot some of the other sites where I had bigger welts turn bright red. On me that's saying something b/c I'm not the palest person. ;) I should probably call the doctor and see what they say about it. I don't really want to.

Tired and I have nothing else to say.

I shoudl be taking a shower and

heading to the NEX. I need to make an appt with Molly to do something with my hair b/c it's horrid. Breaking off, really dry. You know it's bad when I'm bothered b/c normally I don't care. I know it's the meds but maybe she can do something about it. I might have super duper short hair here pretty soon.

I'm tired and all I've done is walk around with the plumber, the front spigot is leaking and the back one wasn't working, and do all the laundry. I haven't even put it away yet. OH and I made lunch and breakfast for Meredith to NOT eat it.

I think I'll go shower. Maybe.

Oh Wait! I tried heat both before and after my shot yesterday and it made the welt better. THat's a good thing.

It's just past 8...

and I'm already showered and in bed. Meredith is asleep and I think Red would be too if there weren't some football games on. BEAT. That's what I am.

The nurse was 20 minutes late. She did answer my questions but most of her time was bsing about Navy crap b/c her dude was in for 20 something years and is now a civilian with the command Red's last ship was connected to. She also said a few 4 letter words. Too bad for her when they call to ask me how it went I'll tell them how she was. Helpful, but late and used curse words. Too bad so sad for her.

We got grocerys and had Chili's for lunch. Too bad it's supposed to rain a lot the next several days b/c I want to grill. Oh well. That's actually ok b/c dude works tomorrow and Saturday.

A slide show...

On this slide show there's Meredith's room, Meredith's bathroom, The half bath downstairs and the guest room/scraproom/office. Also the part of the living room that the downstairs toys live in.

Today was a good day. Red went to music class with us since he's on his 4 days off. She didn't dance with her frineds like normal. She sat right under Red and sang along and did the activities for the day. It was kinda cute. No jumpng even for hot potato. Whatever. She can jump next week b/c I think Wednesday is a sleep day b/c he'll have just gotten off of nights.

I went to see one preschool that I liked just fine but it had a wait list. If I'm going to put her on a wait list it'll be a montessori wait list. We go in 2 weeks ot see one of the close by Montessori's. She can go the day she turns 2.5. I thought it was semi dumb to send her to preschool. First b/c I'm paranoid. second b/c I'm home with her. Then I realized that I need time to do things that I can't take her with me and she needs time with other kids and other adults. She learns a lot from other people. Now that she can talk ok I feel sure if someone hurt her she'd tattle like nobody's business. She's pretty territorial with her personal space like mama so that's good too. She'd only go half days 2 or 3 days a week I think. sio really it's not that long.

Tomorrow is the visit from the copaxone nurse. That should be interesting.

Today was left hip. I also realized something. Last summer I lost the car in a parking lot when we went to the air show. I walked around for a good 2 hours up and down each row of cars looking for it. finally when it was the last car in the lot, literally, there it was. I know I had to have walked past it like 10 times. I think that was my first evil flare.

laptops are hot

and are the same as sitting outside when it's too hot when it comes ot Navasha and her issues. Does she have one of those cooling things? Yes. Is she using it? No.

Today I have a big ole welt on my right thigh. That's b/c it's Monday. Right thigh shot day.

On a more serious note, I have a friend who really needs thoughts, prayers, whatever you dos for her dude. He's had a stroke and they're doing what they can for him. Send them on down to Texas will you please. They're good people and shouldn't have to be dealing with this.

The smell of Paint...

is on my nerves. If I never smell paint again it'll be too soon. Too bad that I still have a few more things to do with it. They can all wait though.

I think I'm overdoing it just a tad bit. I'm tyired and can't seem to sleep long enough to help it. I also feel wierd...tingly and my legs keep not wanting to work. I need to slow wayyyy down.

Oh well. That's all for now. Besides a right hip shot today. I did it when Meredith wasn't in the highchair. Al she did was stand and watch and count for me. I count to ten while pushing the med so I do it slowly. Then she talked to me while I used the cold pack. She's all nice and stuff.

First day of the 12 hour overnight shift

I liek that he's working when we're mostly sleeping...except tomorrow might suck when we need to be quiet and let him sleep. Time for a trip top Little Creek and the park with our lunch. Yeahhhh that's the ticket.

I've been overdoing it so the progress is about to slowwww wayyyy downnnn. Running myself ragged isn't going to help anyone. Today was right arm shot. I have my lump spots but I'm getting better at ignoring them.

Can't think of anything else to say. Maybe b/c I'm hella tired.

Bye.

We painted today...

the dining room and the foyer/hallway. It looks good. Have to wait for the paint to dry all the way to retape and do the trim. Tomorrow it'll be done.

The Shared Solutions nurse chick called and we scheduled a time for her to come to be sure I have all my Copaxone stuff straight. I swear I"ve gotten something from fed ex every day for the past week from them. travel stuff, hot/cold packs, a fridge magnet/picture frame that says this is why I take my copaxone which I thought was pretty clever. Lots of rad stuff. I also went in this old people med type store where they have assistance stuff like wheelchairs and stuff while Red went in Running Etc to get new shoes. I got a clipper thing for my syringes b/c I'm going to fill a sharps container up pretty quickly now. I only see the neuro every 3 months or so so this way I can clip the needle off and throw the syringe in the regular trash. They don't have rules for that in VA so I can do it. EXCELLENT. DYK they don't charge sales tax on medical devices? I didn't know that. I told the chick I'd be back for a travel case that holds more syringes than the one I have but didn't intedn on coming back for anything else they carry for quite some time. She smiled. I wasn't kidding.

Most everything is done in this joint now except for our bedroom. Why do I always do our space last? Makes no dang sense.

Today was left hipps. I think this whole lump thing is not cool. Also I swear these needles are dull b/c I have to push pretty hard to get them to break the skin. That's not all that comfortable.

Today was a belly shot...

and it still hurts. Dang belly shot. And yesterdays leg shot looks like someone frogged me in the leg. Dang bruise.

I found another table at Target online that looks like the other rad one. Check it out. I'm thinking I need to get it.

I started over today

another left thigh shot. I accidentally blew up the heat thing in the microwave so I couldn't use it. Now I see that heating the injection site first is helpful.

Tomorrow Dude starts shift work. 2 days 7-7, 2 off then 2 nights 7-7, then 4 off. We'll see how he does sleep wise. I see crankiness in our future.

I bought hallway and dining room paint today. Tomorrow we're going to go out and be busy thru naptime to get this small girl back on her sleep schedule. I'm tired of the up late mamamamamama over and over again thing then crashing and being evil when I wake her up in the morning. Something has got to give.

Um that is all.

We had people over today...

it's still very unorganized but we had the F family come over b/c we had lots to put on the grill. It was kinda fun. We're going to swap houses once a month and get together for dinner. I like them so it's cool.

I finished taking down the bathroom wallpaper, Meredith's bathroom, and it's all spackled. I need to sand and prime tomorrow then I'll e-mail the owner and tell her she's free to come paint when she wants to. Then I'll put all of the new stuff I have in there. I'm excited for that b/c it's all too cute. I also need to prime the foyer and entry hallway. UGLY is what it looks like. The epople who used to live here had some very interesting taste. That's the nice way to say it.

Tomorrow I'm going to do some work outside and the prime sanding thing and I think that's all. Maybe I'll let Meredith help me wash the cars. She might have fun doing that and they need it.

Today was right arm for my injection. Yesterday was left hip. All I have left is right hip and I'll have done my first 7 shots. Woo hoo for me.

I'm going to join Short D's kickball team. The days Red is working I can't play but every other day I will. I'm excited for that.

left arm today

and that is all

yesterday was a belly shot...

and we missed music class b/c I swore it was Tuesday. Something is wrong with me when I don't know which day it is.

Ohh I saw an even better table online. Check it out. Rad Table.

today was right thigh...

and I got the chance to massage the lump from yesterday so that it at least isn't sticking out of my leg like some kind of growth. Not comfy. BUT I didn't wake up feeling sick. I guess it's a trade off. I'm tired of trying to organize so I'm going to stop for a few days. I am looking for an acrylic side table for the office/scraproom/guestroom. I may make one out of plexi b/c I do't feel like spending minimum $300 for a rad one.

I started the Copaxone today...

I called the Shared Solutions number before I did my shot b/c I knew that you inject it differently than you inject Rebif. Good thing I did b/c I would have hit muscle if I had injected the way I used to. Since I can't pinch more than 2 inches I have to stick the needle in at a 45degree angle. Then you grab your area, insert needle, let go of the skin you grabbed then slowly inject the medication. It didn't hurt to do it even though the needle is significantly larger than the old needle and the med didn't burn going in. Good things. It did leave a big ole welt on my leg, which is normal apparently, and it burned and stung for a bit aferwards. I just know I won't wake up feeling like poop so I can deal with welts and stinging. This shot was left leg. I need to keep track for sure again b/c I have to do one a day and can't do it in the same spot twice in 7 days. Supposedly. I also learned that your stomach counts asd one area, can't split it in 2 like Rebif lets you. And the chick said don't inject into stretch marks. Yeah uh huh. Have you seen my stomach? ;)

I've done more work on the house. Most of the office/scraproom/guest room is done. I need curtains and more pillows b/c I changed the bedding. Also I need a piece of narrow furniture for the tv and printer, also for whomever stays to put their clock or glasses or whatever. I'll find it. I'm still looking. I also need to find the camera battery charger. I have no clue where that is.

Busy busy busy I am. I need to make a list for each room and hang it in it so I can cross it off when I do something. I'm starting to efeel overwhelmed. I think I have ADHD b/c I can't stay focused on one thing to save my life.

Yesterday was...

our 9th wedding Anniversary (I just had to edit this b/c I'm a moron). We don't typically do much but we did go to the yummy seafood joint I like so much and Red brought me flowers when he came home form work. That was nice. We were supposed to go see DMB but it really was too hot.

We also went to a picnic thing for his new command. I talked to one chick who seemed normal enough. Meredith played in a jumpy thing with her kid, who was also two but turns 3 in November, for like 45 minutes. That was interesting. It's wierd to me that a command holds functions like that. See how sucky his old ones were?

Today is my last rebif shot for awhile. I'm not sad b/c I still feel like crap from the Wednesday one.

That is all.

I coudl change the name of my blog to...

The Copaxone Chronicles. For many reasons I'm on a different med now. I'll finish the 2 doses of rebif I have in the basket this week then switch to copaxone. I will eventually go back to rebif. Only time will tell. Obviously I went to the neuro today. Very interesting appt. NO need to think of which day is shot day now b/c I take a shot every day.

AF number 2...

I can't find my paper calender so I need to write it on here. Just fyi.

I just ordered...

a few poster sized prints of the small girl that I edited on snapfish. 3 black and white ones 12 x 18 or something. I'm going to put them on the wall. I wonder if I can share them? hmmmm. Probably not b/c I saved them on there not on the computer. Whatever. When the wall is painted and frames are purchased etc etc I'll share. I may take them to have them framed and matted and everything.

Tonight she woke up at 11 like clockwork. I went to her doorway and said it's ok Dodo go back to sleep and she did. I think I'm going to go to bed and leave her there and see how she fares. I mean how IIIIIIII fare.

Her room is done...except for one shelf that I need the level to put up. Need to find that. We're mostly unpacked just not organized. It's messy most everywhere and it's on my nerves. I think we'll spend our day downstairs tomorrow trying to get more stuff put away.

I'm feeling the same. REALLY TIRED. I need to sleep. Might be a bad night fo rme to not co-sleep. This week is LEFT. I need to put the calendar up.

Oh Red checked in on Sat and goes to work tomorrow. Hopefully it doesn't suck.

So, if I'm tired...

why don't I go to bed? I've finally hit the wall of not enough sleep, too hot, too much to do, done too much too quickly. Tomorrow I will do Meredith's room and get the wall anchors for the stair gate. I can't find the ones I have here and looking is pissing me off so I'll just go to Home Depot and be done with it. I need to go to Bed Bath and Beyond to get blackout curtains for the dude since some days he'll need to sleep during the day. Besides the dark thing we have a huge gluteal region window in our nedroom and I bet it leaks a lot o fheat in the winter.

Meredith's little play space downstairs is all set up. We got those number/letter mat things for an area rug type thing and she lost it by not listening to Dada today. Oh well. Tomorrow maybe she'll get it back. She also has a new rug that has a road and crap on it. Looks kinda fun.

Is it wierd that all of our toilet seats are new? I can't sit there where someone else's butt has been and not think of the fact that I won't do that in public. What's the dang difference?

The landlord people did come today. They stripped the wallpaper in the kitchen and started in Meredith's bathroom. Painters are coming, the fixed a bunch of stuff and replaced a bunch of other stuff. Things are coming together. The w/d are 858983 years old though and really I'd rather they dump them and we buy new ones then use them. Maybe that's wierd but it's how I feel. I may talk to Dude about that and see what he says. I'll need to do laundry soon so I need to get on it if that's what I want.

I have the lip face numbness thing again and my upper back, like my trapezius, feels not right numbly. More neurontin I bet. I need to ask when my next MRI should be as well. Oh and tired and hot = wobbly oooo almost fell.

I'm sitting in my new bedroom...

and it's bigger than I thought even with 58584 boxes around the bed. Yesterday was a longggggggggggggggggg day that started at just before 6am when I got up to be sure we had everything set aside still so they didn't put it on the moving truck. The day before they came and packed us. OMG THERE IS NO WAY I'D HAVE MADE IT THRU A DITY!!!

Yesterday started out kinda bad. When Red got there, the new house, to wait for the COX Cable guy (Priorities you know. We have internet even if there is hardly no time to use it and I have the DVR box set up so I can record all my stuff. TV may not be on the wall but I'll see my shows eventually!) the joint was a MESS. I couldn't leave b/c we were waiting for the movers to come get our stuff (Red's Mom was not one of the authorized people to do that) to see what he meant or to help him clean. He had a bucket, some rags and some bleach and did a dang good job with a cursory cleaning. They came, loaded, then took the stuff to the new joint. In that 2 bed 1 bath ~900 sq ft apt plus a closet storage unit they said we had 7000 pounds of stuff. DANG!

So we get here and they unload. I direct some stuff. Get out our bedding and dump it on the bed. Take those boxes back to the apt b/c there's stuff there that needed to stay while I cleaned it and got started. OMG THANK YOU MS.D FOR COMING TO HELP ME!!! I would have never gotten done had you not come over! So the cleaning got done, the carpet guy came and did his carpet thing then I came back to the house. Needless to say I'm in a foul mood b/c I'm tired and things don't seem to be going right b/c now we need to clean this joint.

PS I haven't eaten dinner but Meredith had napped with Grandma and she had eaten pretty well today. Every time I saw her, wayyyyyyy less than normal, she nursed like a fiend. Enough to clear the too much milkness in seconds. Poor girl. Red got me a salad from Wendys, we all sit to the table and eat a snack/my dinner. Then start walking around snapping pictures of the evil.

YAYA for internet b/c I compose an e-mail to our new landlord chick at like midnight with Red and his mother's help. It listed 13 things that we had issue with and included pictures. I went to bed mad and not looking forward to today. I woke up like an hour ago and checked my e-mail. 3:48 the landlord had e-mailed back apologizing for all the issues. She will be here Saturday with her dude to fix what they can, they will deduct the cleaning from next month's rent (she's mad here b/c she paid someone she normally uses to come in and clean which I thought she had b/c she's not a dirtbag) and an electrician will come early next week for the other minor electrical issues. Granted I still need to clean b/c I need to put my stuff away and can't wait for the ocean maidservice people to fit us in, but that's ok.

I did go to the gyn this week. Uneventful. Acually, it was eventful. It didn't hurt like the past 2 so the scarring from my episiotomy must be all happy now. That makes me happy. I have a neuro appt next week and it's late enough in the afternoon so that Red can go. Good b/c he has questions too and I also have bloodwork to get done. Meredith is not a fan of bloodwork even if all she's doing is watching.

I will say that yesterday I seriously over did it. I'm only awake, ok this may not be the only reason, b/c my arms hurt like a bitch and feel like lead weights. Last night I was IMing with Jfrenchname and I had to just stop b/c my arms hurt so badly. I stayed cool, mostly, but I didn't listen to my body when it said to sit down. After I clean the kitchen I will go much more slowly. Oh and Meredith's bathroom needs cleaning again ours does too but that can wait, except the toilet b/c I do need to pee at night you know. Fortunately the bedrooms just need to be unpacked. They repainted so the walls are all new and the carpets have been shampooed so that's not a big deal either. OH OH and I dumped our old vacuum so today I will be buying a new one. :) I love moving. Hehe.

My new phone is awesome. I have a TREO with unlimited texting now as of the nex billing cycle so feel fee to text me. ;) It's awesome really b/c it alarmed yesterday several times to remind me about my meds and other stuff I sure as hades would have forgotten to do. YAYAYAY that was it's purpose.

So if I forget to update my address and you want it shoot me an e-mail and I'll send it to you. The phone numbers haven't changed. Off to read the boards and look up some cleaning tips so maybe I won't have to stink everyone out of here with the fumes of what I normally use in the kitchen.

It's wierd...

when there is nothing on your walls. It's also wierd to think that a group of strangers is going to be fondling all of your crap in just a matter of hours.

I'm excted to move. We found mold behind a mirror that was attached to a wall and on the wierd window. Absolutely nasty. Red got mad and went over to the office and made the chick come and look. She's like, you won't get charged for that. THAT"S NOT THE POINT! I bet after we leave here all of the sudden Meredith doesn't have allergies any longer. NASTY. AND I CLEAN THIS JOINT. Good thing I have thf ilter thing. I keep it in the room Meredith is in. Just Nasty!

My MIL is coming to help us with Meredith while we move. That's a good thing. Kinda wierd but I appreciate it.

I feel the same. I have an appt with Dr s next week to ask a few questions and have more bloodwork. We'll see how it goes.

The little girl...

seems to be having issues. She won't nap or go to bed like normal. I guess a lot has changed for her lately. More change is coming soon too. Oh well, we'll get thru it.

PS I'm tired.

I'm wondering...

if there's anything else I can do about the fatigue than take meds. I don't feel like exercising. I don't sleep well when I do sleep. Something has to be done b/c I can't walk around all zombiefied all the dang time. I'm apparently a pretty good faker b/c not too many people know I don't feel all that hot. What does that say for me?

I did get my pretty new medic alert bracelet. It's this one. The blue beaded one further down the page. I like it. Really I should have had one ages ago b/c I am allergic to cillins and their derivatives. I wonder why doctors don't suggest it?

Not too much longer and we move. It's making me more tired and it hasn't even happened yet. I feel like I have a lot to do including finding decent gates for the stairs. Meredith thinks hopping is a good way to deal with stairs. No, it's not.

I'm a slacker...

but I have an excuse. The past few days have been crazy busy. Dude came home, we had our first day and today is his 35th birthday. Happy Birthday Dude! We signed the lease. Dude says he likes the new joint and in exactly one week we move. Busy Busy Busy.

Today I forgot to take my neurontin. I slept for crap last night. Woke up at like 6am with a stabbing pain in my face so I took a decongestant and some motrin and went and sat on the couch. I also fell asleep sitting up again only this time Red is home so he made me lay down and take a nap. I slept for 90 minutes. Craziness.

I did order a new phone...ordered b/c it wasn't in stock in the store. This time I didn't get the free one I got one with a PDA so I'm going to put in all the meds and appts and stuff I have to do and make it alarm. Can't ignore an alarm. I have to find something to make me get in the med groove. I can't forget when I'm in a hurry or crazy tired. It only makes everything worse. I also have too many dang lists that I can't keep straight any longer. Now I can. I have to.

Red would like me to work out again. I say I'm too tired to. I know it'll do me more good than harm, does that make sense, but I have to make myself do it. The new neighborhood is a neighborhood so maybe Stink and I will be going on walks more often. Maybe when it's cooler anyway. Excuses.

the nurse called back this am

at 7:30. She didn't say anything any different than the MSLifelines dude. Waste of time. I just need to call the doctor. I don't know why these sites are going all wonky on me.

Tomorrow is the day in theory. I'll post a picture tomorrow night if it's true.

Us

Create your own family sticker graphic at pYzam.com

when you have pills to take...

always look at the pill and ntot just the label to be sure the pharmacy gave you what you're supposed to be taking.

I went to fill my pill box for the week and noticed my re-fill of neurontin doesn't look the same. So I whip out the handy dandy pill book that I have and looked it up. Generic neurontin aka gabapentin is an orange capsule with certain markings at 300mg regular neurontin can be 2 sided beigey/whitey capsules. They really should give people that kind of info. I wasn't sticking something in my body that I had never seen before and neither should anyone who is reading this.

Today is grocery store day. I used the last of the milk and doodster needs some diapers.

I'm half freaked out b/c her adhesion looks like it's closing more not opening with the premarin. As long as she can keep peeing it's ok I know but still. Too bad she fights me when I put it on now. Thanks Ms D for suggesting a nap application. I honestly hadn't even thought of that.

What do I write?

I don't even know. I need to make my yearly gyn appt. But I also need to know when Red is on and off b/c I can't take Meredith with me. They cancel your appt if you do that. I need to make my next Neuro appt but in theory they can't see the August schedule until August. The MS Lifelines dude said he was putting in an alert for SusantheNurse so she can come again b/c of the injection site reactions. Yeah she hasn't even returned my call. I'm not a big fan of hers.

I'm hungry. That is all.

People who don't tell me...

exactly what they think and try to bullshit me bug me. That makes me more tired than anything. You'd think anyone who knows me knows I don't put up with that crap.

The right arm injection site reaction sucks still and now I have one on my right belly and thigh and my left thigh. I called MS Lifelines b/c I was wondering what to do with rotating my sites. They sad move further over on my leg and to massage the spots and use hydrocortisone cream. Yeah, I do that already.

I was going to make my old days list of issues but tey havent' changed. I do have this wierd back numbness that I think I talked about before but it's wrapped all the way around like I'm being hugged by the other Red. Everyone who has been hugged by him knows what that means. Bear hugs. Big ones. That's not going away. It's getting worse actually.

We do have a house now. Paid a deposit and everything. That's a big weight off of my shoulders. I also went to PPO today. It sounds like the move is on with them too. Good.

Ever been so tired...

that even sleep doesn't help? That's me.

Ever been so tired that you forget to do normal things? That's me too.

I was told that this tired thing was "normal" now. I was also told that sleep won't fix it. It's just a thing. Now I know why half the people I've met or chatted with on a message board with MS are on some kind of script for it. I may join those ranks prety soon here.

The old Baby Da is gone...

b/c I didn't wash her properly after she was nearly killed in an accident with a mud puddle. Fortunately she is an identical quadruplet and her identical "sibling" is good enough according to the expert named Meredith, to be a replacement. My first fake out as a parent. It's a good thing. ;)

I forgot what else I was going to post. I'll be back later to try again.

ped eggs are ...

gross but they work. I listened to those of you who told me they did. See I listen sometimes.

I'm tired. My arm hurts. I still have a lot to do. There's no ticket or flight plan yet for a certain Dude. Things are just yucky right now.

I'm back to the right side for the shots so I guess I'll do hip instead of arm this week. Not supposed to inject in a sore or something area. Makes sense huh? I don't hink I coud stick even the thinnest needle in my arm on that side right now.

That is all

I found another place

a townhome. It has a small yard but is in an EXCELLENT neighborhood that has trails and crap and has a LOT of space. And it's not too far for Red and his new command.

I feel like poopy. I need to call the doctor tomorrow and ask about my arm and the injection site business. I'm tired but the provigil apparently decreases milk production.. Things I have to ponder.

today has been a long day

and it's only 2 o'clock. House issues, Meredith woke up at the crack of dawn so we've already gotten everything done. Just too much all before 2.

I can't even think straight so I'm not going to type anything.

I'm making a team for the 2008 MS Walk

Here's the link to the info...2008 MS Walk

The team name is Walkie Talkies if you want to join. OH and it's the VA Beach Red Wing Park one. It's September 28th. All you need to do is register and join a team. JOIN ME!! It'd be fun to have everyone walking with me and Dude and Stink. There's a team page that I haven't quite figured out yet but when I do I'll link that too. Oh and it's free to join. And I don't expect donations. Just come walk with me.

Today my friend D called and said I saw this rad thing on Craigslist. So I went to see it. OMG coooool stuff. A big ole warehouse that has all this stuff from buildings and crap. We got tables that used to be in a school they tore down and small little school chairs. I need to go back.

I did stay in the heat too long and don't feel the greatest but oh well. I still have the itchy spot on my right arm form the shot so I think when I get to right arm next week I'll skip it and do hip.

One of us is crazy tired...

and is considering the Provigil. Too bad that one doesn't want to take any more medication. Doesn't mean I won't be asking about it. I did nap for about 30 minutes. Didn't do any good. I think napping makes me more tired. Makes no sense but whatever.

Today is laundry day. Hers is all done. When she wakes up I'll put it away. Mine has't even been started. Not sure I'm going to hurry to do that.

Tomorrow we're going to a playgroup thing at a chicks house. Mostly b/c she doesn't live too far from here. We need to stop and pick up some fruit to share on the way.

That is all.

Wait let me try something. Link

IT WORKS!! THANKS PERSON WHO SENT ME THIS LINK!!

It's raining and...

we had music class. It's naptime and I'm watching The Quiet. A very odd movie. Nothing else is new that I haven't already mentioned.

Oh wait, I called the PPO office and asked why I hadn't gotten an e-mail or a call from the moving company yet. The dude is like don't worry it's far enough away where they'll e-mail you. If they don't then call back in a week. Yeah uh huh. That's not comforting.

Susan the Rebif nurse came today...

she told me what to do to my red itchy shot spot. She said I sounded like I was doing well. The few questions I had that she couldn't answer she said they weren't things to worry about but to bring them up to Dr. S. I had intended on it so hey whatever.

We went to Oceana, drove by the house again from Dam Neck and even my always gets lost in that part of VA Beach butt got there quickly so that's good for Red, then came home and ate lunch. Now Meredith is NOT napping b/c she fell asleep in the car.

Tired and have a headache today. Don't know why. Also my lips and like half of my tongue feels like I've been to the dentist for some drillage. Not cool.

That is all.

I think...

that the injection on Friday rected with my skin. I have an itchy red spot on my arm where I did the injection. Didn't even notice it until I started itching it too much. I'll have to ask the nurse about it tomorrow. Hmmmm. Interesting.

Must take my motrin for tonights shot now. Interesting. I'll watch this site for a reaction too. LEFT LEFT LEFT.

I'm boring...

which I guess is a good thing. Nothing new is happening. Nothing new to report. Just waiting. Always waiting.

Sunday Sunday....

I really think my neurontin needs to be upped. I need to make an appt with the neurologist for more bloodwork and to talk over a few things. The rebif nurse chick will be here Tuesday morning to check in on me. That's about it.

I also think I'm back on my tired cycle. I have no clue why. Oh well.

We have a date in theory...

for Red to be home. Not too much longer YAYA!!

Nothing is different today.

We went to the park. Meredith hates being dirty, it was wet and kinda mussy, and she hates BUHSSS!!! i.e. bugs. She's kinda funny. I don't know where she got her girliness from. Oh well. She is who she is.

I did order this bed thing for her, the comforter cover and the pink butterfly pillow. I also want this which I've seen at several different websites...just the headboard FYI.

One day I'll read and figure out how to link a website under a clickable word. For now I don't care. ;) But, if someone woudl like to tell me how to do it I'm open to learning. ;)

BOOOOM BOOOOOM BOOOOM

those were fireworks. Visualize. They look rad huh? ;) You're welcome.

Nothing new today so I'm not even going to post anything really. Shot was right arm. That is all.

Wait, I did have a balance issue again today. I forgot. I guess I also have a memory issue too. That's normal though.

I was talking to a friend...

and I said this:

more free advice = when the ballons are twisting around you and you don't like it let go of the strings...they're helium they'll go away.

How's that for free advice?

I actually feel ok...

after the second 44mcg shot. That's a good thing. Maybe I'm used to this med now. Maybe.

I went thru my closet again. Lots of shirts that needed to be taken out. The boobs aren't going to shrink any time soon so there's no point in dragging all the shirts I can't button or wear without loooking questionable all around the joint and stuffing a new closet with it. Bye bye shirts.

I feel ok. I'm just glad that the countdown has begun. NO MORE APT!

WE GOT THE ONE HOUSE....

and we'll be gone from this teeny tiny take you people too long to fix stuff apt in 29 days!!!! YAYAYAYAYAYAYAYA!!!

belly shot day...

and nothing else is new. I'm having issues getting ahold of the dude who owns the house we want. I can't remember if he said they were going out of town this week so I'm betting that's it. BUT I called his cell as well. He'll answer. I did set up our move. They'll pack on the 30th and deliver on the 31st. In theory.

That is all. Moving makes me anxious.