- 1979 Plymouth Horizon
- 1994 Ford Escort
- 1992 Mitsubishi Eclipse
- 1995 Honda Accord
- 1992 Honda Accord
- 1988 Ford Mustang
- 1994 Mitsubishi Diamante
- 2002 Landrover Discovery II
- 2005 Jeep Wrangler Unlimited LJ
- 1995 BMW 325i
- 1996 Kia Sephia (It wasn't mine, it was Sarah's, but when we married, it became my prob)
- 2002 Landrover Range Rover Sport
- 2007 Landrover Range Rover Sport
- 2009 Jeep Unlimited
- 1999 Jaguar XJ Series Vanden Plas
- 2002 Saab 9-5 Aero
- 2009 Subaru Forester
- 2012 Mercedes C300
- 2010 Landrover Range Rover Sport
- 2019 Toyota Tundra
- 2002 BMW 525i Alpine
- 2011 Honda Odyssey
- 2004 Ford F150
- 2016 Kia Sedona
- 2018 Volkswagen Atlas
- 2015 BMW 428ic
- 2024 Ineos Grenadier
- 2012 BMW X5
- 1974 Alfa Romeo Spider Veloce
- 1965 Ford Mustang
Q, Pooh, Lou & #2
The Shared Adventures of the Most Blessed Man Alive!
Friday, October 17, 2025
Lists! Lists! And More Lists! Cars!
Saturday, October 11, 2025
Lists, Lists and More Lists! Concerts
One weird thing I've always done in my journal is keep lists. Some of them are personal, some are not. I thought I'd start posting some of them in this blog that has pretty much died. I didn't want it to die, I've just been too busy. I need to make more time for journaling and blogging and things of that nature. I really do believe these things are important and therapeutic. Anyway, here is the first of many lists! These are bands/musicians I've seen live in my lifetime thus far. They are in no particular order as this list is not a ranking.
- Michael Jackson
- Thompson Twins
- Thomas Dolby
- Beach Boys - xxxx
- Chuck Berry
- Temptations
- Frankie Valli
- Billy Joel
- Sting
- Billy Idol
- Violent Femmes
- Fab Four
- Rush - xxx
- Journey
- Barenaked Ladies - xxxxxxxxxxx
- Guster - xxx
- Gene Loves Jezebel
- B-52s
- Chris Isaak - xxxx
- Barry Manilow
- Tina Turner
- Spandau Ballet
- Howard Jones - xx
- Haircut 100
- ABC
- Vandals
- Circle Jerks
- Cherry Poppin' Daddies
- Def Leppard
- The Cult
- Duran Duran - xxx
- Bastille
- Depeche Mode
- Erasure
- Yaz
- OMD
- Tears For Fears - xxx
- Sophie B Hawkins
- Tracy Chapman
- Suzanne Vega
- Indigo Girls
- Smashmouth
- Oingo Boingo - xx
- New Order
- They Might Be Giants
- Aerosmith
- ZZ Top
- Foreigner
- Styx
- Oasis
- No Doubt
- Jane's Addiction
- 311
- Linkin Park
- Blind Melon
- Fastball
- Ben Folds Five
- Ben Folds
- English Beat - xxxxxxxxx
- Big Head Todd and the Monsters
- Blues Travelers
- Uncle Cracker
- Donnie Osmond
- Toad the Wet Sprocket
- Semi Sonic
- Dela Metri
- Colin Hay
- Men At Work
- Toto
- Cristopher Cross
- Jimmy Buffett - xxx
- Blondie
- Berlin
- Nile Rogers and Chic
- Stray Cats
- Squeeze
- Psychedelic Furs
- Flock of Seagulls
- AJR
- Almost Monday
- MXM Toon
- Alan Jackson
- George Strait
- Asleep at the Wheel
- The Tractors
- Aquabats
- Jimmy Eat World
- Stetch Armstrong
- Chump
- Fishbone
- Chicago
- Harry Connick, JR.
- John Williams and Boston Pops
- Mormon Tabernacle Choir
- Nada Surf
- Jack Johnson
- Donovan Frankenreiter
- G-Love and the Special Sauce
- Nick Lowe & Los Straitjackets
- Elvis Costello and the Attractions
- America
- Semisonic
- Papa Roach
- Collective Soul
- Brooks & Dunn
- Diamond Rio
- Third Eye Blind
- Sarah McLachlan
- Hootie and the Blowfish
- .38 Special
- Edwin McCain
- Dave Matthews Band
- Kaleo
- Ben Harper
- Reel Big Fish
- Less Than Jake
- Paula Fuga
- Eddie Vedder
- Willie Nelson
- Jake Shimabukuro
- Mason Jennings
Tuesday, January 10, 2023
Tis But a Shame
It's a shame, but I haven't taken the opportunity to record my thoughts much since my diagnosis. I really should have. Believe me, it isn't for lack of thinking about it. Quite the opposite in fact. My kidney disease has consumed the lives of myself, my beautiful wife and my two amazing children. It seems to dominate the conversation wherever I go, so much to the point that I feel bad. Perhaps I hear about it so much the last thing I want to do is spoil my silent down time writing about it. Nonetheless, I should.
So many ask. So, so many have shown their concern for me and my family. The abundance of love I've felt is so special to me and it has humbled me. For this reason alone I should take the time, whether I want to or not, to update those that want to know. For those that don't want to know, I'm okay with that too. In fact, for those who are tired of hearing about it, please accept my apologies.
With those apologies made, let me bring you up to speed....
Status1! I am status 1. This was a lengthy process that took much of the year. Early 2022 when I was diagnosed with final stage kidney failure, I immediately was placed as an applicant for the kidney transplant procedure. This entailed a lot of poking and prying and time off work. I had to do full body check ups including nuclear tests, stress tests, EKGs, CT Scans, Ultrasounds, X-rays, and more. I was cleared quickly as one who is strong enough to endure this type of procedure, so I was placed on the list as a "Status 7" recipient. This means, I can handle the surgery, but still have more things to do in order to actually be a recipient. It's a sort of waiting list to get on the real list.
To become Status 7, I had to attend an 8 hour day with the Transplant team where they put you in this uncomfortable little room and every member of the team takes some time with you to explain the dangers and benefits of receiving a kidney transplant. I was assigned a nurse that is to act as my advocate on the team. I met with one of the team surgeons and the team Nephrologist. These two in particular impressed me and made me feel more at ease. I met with a financial advisor (because the surgery is expensive), an insurance representative and with a social worker. Apparently this procedure can be mentally difficult for some so they really work over you mental capacity and ability to handle this. Someone even met with Sarah to discuss care taking and what her role will be in my recovery. It was a big day filled with information.
Now that I was officially Status 7, I had a laundry list of things I needed to do to present myself for Status 1, beginning with 12 vaccines, a couple visits to the dentist and a colonoscopy. Of course, I had to continue meeting with my Nephrologist every month as well as have a monthly blood panel extracted and reviewed. The biggest hurdle on my to do list was to lose weight. We'll talk in more detail about the weight loss another time, but sufficeth to say, by December 27th of 2022, I had completed all that was asked of me and I was officially declared Status 1.
A friend who cares. Everybody needs one. I have so many. While dealing with this CKD, I have good days and bad days. I mostly try not to let the bad days change my routines or schedule, but I've learned that sometimes it's better to just give in and stay in bed. When I miss church or a neighborly activity, I immediately get texts or phone calls checking in to see how I'm doing or if there is something that can be done. In addition to the hundreds of prayers that I've felt this year, these texts and calls...as much as I hate being the cause for this attention...mean so very much to me and have helped to sustain me. The weekly wellness checks are my favorite. I hate being the subject of such a need, but ultimately, I'm happy to get those wellness checks from those that love me. I love getting messages that my name was placed on the altars of the temple. I've been the recipient of small acts of kindness such as a gift card, or fresh rolls, or raking of the leaves. All of these things help to buoy me physically and spiritually. Thank you.
There are so many of you that have shown the ultimate sign of love and sacrifice and have applied to be a donor for me. I cannot fathom how overwhelmingly amazing that act is...to simple be willing to consider it is such a great sacrifice. I've heard from many of you that you were rejected due to previous health experiences or body mass or other reasons. Please don't feel bad. The thought and consideration and attempt to do so, like all those other acts of kindness, means as much to me than the actual donation of a kidney. Some of you have been rejected due to nothing more than your own weight, but have taken the seriousness of your sacrifice further by committing to lose the weight so that you might qualify in the future. One person, I'll call him Duane, even lost somewhere around 90 lbs just to qualify as a donor for me! That is an amazing sacrifice just in order to qualify to sacrifice so much more. Some of you have stopped by my house to go walking in an effort that we both can lose the weight and qualify.
I had one friend, we'll call him Jon, that actually donated his kidney. The minute he heard of my suffering, he immediately called and said, "Let's get you better, let's get you a kidney." As it turned out, we weren't a match and I was not yet Status 1. He consistently called or texted or emailed to check where I was on my "to do" list and what he could do to help. He was always encouraging and is still today. Last month, he was found to be a match with someone else far from here. He proceeded with his donorship even though he knew not the recipient. What kindness. What an example. Because he donated his kidney on my behalf, this helps me move up the list and become more of a priority. I'm not sure how it works, but when the average for a recipient is 3-5 years, I'll welcome any help that might shorten that wait time and grant me life. Thank you, Jon.
This friends I called Jon and Duane, are the only persons I will name by name, but there are so many more. I know there are many on the potential donor list that I'm not even aware of. My nurse doesn't share any information with me due to HIPPA laws. So, if you are wondering why I haven't thanked you for considering being my donor, it's because I likely don't know unless you've told me. And I'm aware of soooo many that way, but have been told there's so many more I'm not aware of. I thank each of you that have shown m love and compassion this year and do so by name in my prayers. I consider your prayers, thoughts small and great acts of kindness to me and my family to be the reason I'm so unhealthy, but can't hardly feel it. Thank you. I love you.
Those I'm most thankful for are my family. They've sure had to adjust a lot for me. Sarah is a champ...there is just no other way to put it. She is simply amazing. Never complaining and I never have to ask her for anything, she's just always there with what I need. I love her and feel so awful that she has to deal with this third kid that is so old and big now. It's not fair, but I appreciate her selfless service. She deserves an award or a recognition night or a friend to take her away for a Swig or a cookie or a movie. She's awesome. I mostly spend my time with my kids trying to protect them from it. I've approached it with them as softly as I can so as to not scare them too much. Dax may be too young to understand, but he's also super smart, so he may just get it and understand completely. Leah on the other hand has always been a sensitive soul and so prone to concern for others walking in the shadows of death. For that reason I try to be as bright as I can be. It's sometimes hard to convince her I'm fine when I can't get out of bed or I'm throwing up...she figures it out. She prays for me though and that is so important. My Mom. She's amazing too. I feel bad I don't share my woes with her like she wishes I would. I know she would gladly take them from me if she could, but that is not her responsibility. I love how she loves my wife and kids as they go through this with me. That is the best way she can serve us and she does so, so well.
Well, it is now close to 3am. This is just the tip of the iceberg. I need to do better at sharing. So many of you deserve it. For now, I'll close and take this up again tomorrow. I love you and pray for your happiness and health daily.
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| To apply for donorship for me or another in need, scan this QR code and see what it takes. There are no obligations. They may ask for my name and birthday. Raymond Marquist Trosper Jr. February 5, 1970 |
Tuesday, July 19, 2022
Update...Sorry, I Couldn't Come Up With A Clever Title
Aloha! Let me start by saying, "thank you". I feel like I say these two words so often these days, yet also feel like I can't say them enough. Thank you. I have always considered myself blessed, hence the blog title, MostBlessedMan. I have felt those blessings amplified this last 7 months and I still don't have the capacity to express it enough. So many of you ask how I'm doing and how things are progressing and in what ways can you help. It really is overwhelming at times. I have received messages from some of you stating that you've applied to be my kidney donor...some have been rejected and others are still in the process of qualifying. I'm grateful for all of you. I'm so grateful to feel the sustaining power of prayer in my life. So many have let me know that I'm in their prayers and I truly feel it. Thank you.
I've been asked a lot recently for an update on how things are going and I thought the best way to do this would be to address the frequently asked questions I often get. Before I get started, please feel free to ask any question that is on your mind in the comments section and I'll do my best to answer in a timely manner. If you don't want me to know who asked, leave it anonymous. I appreciate your interest in my life and I value your friendship.
FAQs
- How are you feeling? This is an important one for me to answer. So many are truly concerned and I feel your love when you ask. The truth is, I feel fantastic. I have fatique at times, leg cramping at night on occasion and a busy mind that worries and keeps me up at night, but ultimately, I feel fine. This is how I feel the power of prayer. Based on my labs and numbers, I should be feeling much worse and experiencing symptoms much more, but I don't. I still do most of the things I did before.
- How did you find out you have kidney disease? About 15 years ago, I was prescribed a new medicine for my Psoriatic and Rheumatoid Arthritis. One of the requirements of the drug is that I need to do blood lab work every 6 months to check my "liver levels" as it can be harmful to my liver. Fortunately, the drug has not had any adverse side effects, but about 6 years ago, the lab work revealed that I had kidney disease. We have been monitoring it ever since.
- What is your GFR? For those who may not be familiar with the acronym, GFR, it stands for Glomerular Filtration Rate. It basically measures how efficiently my kidneys are functioning. The average male has a good GFR of 100-130. For the last 6 years once it was discovered and up until this year, my GFR ranged between 23-28 which is considered to be severe kidney disease (stage 4). I have spent the last 6 years trying to delay the decline of my GFR. Unfortunately, in January of this year, my GFR dropped to 15. Anything less than 15% is considered end stage kidney failure. As of Monday it is currently at 8. Again, you can see why I count my blessings that I feel so good in spite of my condition.
- Can CKD (Chronic Kidney Disease) be reversed? Kidney disease can be reversed at certain stages along the way or at least the decline can be slowed. Unfortunately, at the stage I am currently at, this is not an option, barring a literal miracle. Currently, the objective is to address the symptoms, both those that are seen and unseen.
- Are you scared? Yes. I am. That being said, I realize fear has no helpful place or use at this point. I'm not scared for me, but for my family. I'm not afraid to die, but I am bothered by the prospect of not being there for Sarah, Leah, Dax and my Mom. Almost equally as frightening is the thought of being here, but not being of any help or being a burden to others. I am afraid mostly of the medicines and drugs I am required to take before and after the kidney transplant surgery. I am the least thrilled about the surgery itself and dialysis. Those are all fears, however, I think I've effectively transitioned them from fears to annoyances. There is absolutely nothing I'm excited about with any of the options I have before me, but I'm feeling more inconvenienced, annoyed, embarrassed or the like more than I am scared.
- What caused the CKD? I have undergone all the possible testing one can endure in this process and they've found not genetic reasons for CKD. That leaves things to guesses. I think it may not be one particular thing, but a combination of several things. 52 years of poor diet, preservatives, fast food, soda, a short bout of type 2 diabetes, rapid weight loss, not drinking enough water, high blood pressure medications, genetic make up, auto immune diseases and ibuprofen. We'll just blame it on Putin and move on. ;)
- How is the search for a donor going? I received a call from my transplant coordinator a week or two ago and she told me there are "a bunch" of people applying. She couldn't tell me how many and I'm not sure what a "bunch" is, but it made me cry. Even one applying touches my heart, but to hear multiple people have applied reinforces my thought that I truly am the most blessed man. I still need to lose 15 lbs, get a colonoscopy, see the dentist and get the Covid shot. The last three I can bang out in a week, but the weight loss is proving to be difficult. Before I do that, everything is on hold. I'm trying, but it's a lot harder than the last 70 lbs I lost.
- What can you do for me? Actually, the frequently asked question is you asking me, "What can I do for you?". Two things; First, continue to pray for me. Please pray for me to continue to be symptom free and functional. Please pray for the comfort of my family. The kids get scared. I want to protect them. Second, please share my QR code to anybody that may be interested in kidney donorship. To find a match, and a good match at that, will be difficult, but the more that apply, the greater my chances become. The image of my QR code will follow the FAQs. I'm listed under the name Raymond Trosper and my birthday is February 5, 1970.
- What are the symptoms? Like I mentioned before, I don't have any yet. On occasion, a symptom will reveal itself, but it is usually short lived and has not been a chronic issue yet. The symptoms I'm told I can expect are loss of appetite, food tastes bad, high blood pressure, edema, difficulty urinating, vomiting, fatique, leg and foot cramping, pain or discomfort, brain fog, and more. Most begin feeling symptoms in stage 4 and most begin dialysis when their GFR hits 15, mostly due to the symptoms. This is why I feel so blessed to be at an 8 with no symptoms.
- Can you still work? Yes, I can and I still do, about 40 hours a week. I have chosen to stop going in early in the morning and staying later in the evening, so that my workweek is limited to 40 hours a week. I have always liked to work and I genuinely care about my customers and the business I've built. I don't want to let them down and I enjoy helping others. That being said, I realize my time with my family could be shortened, so I'm trying to make the decisions that are Best.
- What happens next? I have an appointment this week with the surgeon to have a peritoneal catheter placed in my belly so that I can start peritoneal dialysis as early as August. I am going to hold out as long as I can, but the doctor says it is inevitable that my symptomless life will come to a screeching halt very soon and that I will need to begin dialysis to keep me going until I find a donor kidney.
- Are donors required to get the Covid shot? Good question. I'm seeking the answer and will get back to you on this one. You know what my opinion is on it, but unfortunately, my opinion doesn't come into play. I'll get the answer and report it here.
- Do you have to live in Utah to be a donor? Another good question. No, you do not. You can live anywhere in the world. The transplant surgery would require the donor to be here for 2-3 days, but if the donor isn't from Utah, they can be transported here. Costs for travel, lodging and meals would happily be covered if needed.
Saturday, June 4, 2022
Holding Pattern ~ Status 7
Everyone knows, it takes real guts to be an organ donor!
Well, it's been 3 months since I've last posted, and I beg of you for your forgiveness. The response to my initial announcement of kidney failure took me by surprise. Not only did I not expect such an outpouring of love and support, but I was also not expecting my response to be one of shrinking and wanting to hide. It's kind of hard to explain, and if I could explain it, I would probably sound like a looney! I was both overcome with emotions of comfort and relief while simultaneously wishing nobody knew. Perhaps if you've been in a similar situation, you might know what I'm talking about, but the last three months has been an up and down rollercoaster of emotions...tears one minute, smiles the next...times of warmth of embraces followed by periods of loneliness. During times of need for warmth of embraces I sometimes still desired solitude or vice-versa. It's been difficult to process at times. I have always had a pretty good grasp on things in my life, but not as much these days and that has caused me to fall back into the shadows at times and let things pass me by.
That all being the case, I am still progressing toward the goal of receiving a kidney transplant. I've been subjected to almost every test and scrutiny one can imagine along the way, but so far have passed with only a few minor issues. Ultimately, my heart is strong and I've been cleared and approved as a good candidate for a transplant. They have placed me on the waiting list as a "Status 7" candidate. This means I have a few things I still need to do before I can receive a transplant, but I am on the list and "earning time". The short list of things I still need to do include dental clearance, colonoscopy, the covid shot and lose 25 lbs. All of these things are achievable in the next 3-12 months. Once these things are checked off, I will be granted "Status 1".
Once listed as Status 1, there is still one major thing to wait on and that is the most important and key element in the entire procedure...a healthy donor kidney. The average wait time here in Utah for me to receive a kidney will be 3-5 years, however a live donor stepping forward that is a match will speed up that timeline greatly. This brings me to the biggest question of all and, honestly speaking, I find it a difficult question to ask. In fact, for those who have already offered, I find it difficult to know how to respond. How does one ask for a part of another? I'm a pretty independent person, but ultimately, I have no problem asking someone for help, for their time, or effort or financial assistance. I know that those things can all be replaced and there will always be more of them in a lifetime, but to ask for a kidney...someone's flesh and blood. That is a hard ask. And it's almost as hard to know how to respond when someone is willing. Such a huge offering. It isn't giving their life, but it is giving of their life so that another might continue theirs. What an amazing act to consider.
I am not afraid of illness or pain. I've lived with this my whole life. I'm not afraid of discomfort or making adjustments or sacrificing. I'm not even afraid to die, but I am afraid of two things, abandoning my family in their time of need...or worse, being present, but not helpful in their time of need. I want to be able and available to help when it's needed most. This desire to be there for Sarah, Leah and Dax is the driving force for me to go through the things I'm currently enduring...and none of it is fun for me. I hate all of it. Absolutely. I'm doing all kinds of things that I've specifically avoided my entire life, just in an effort to be here for my family and now I must do one more thing that I find extremely uncomfortable.
Please consider donating a kidney for me. For Sarah. For Leah and Dax. For my Mom. I would also encourage you to consider doing this, not just for me, but for anybody that may be in need and a match. There are few times in our lives that we truly have the opportunity to save a life and to give so greatly of ourselves in such a way that has an impact as great as organ donorship has. I love you for considering. If you choose not to or cannot due to whatever reason, I still love you for considering it and for hearing me. I love you for loving me. I love you for loving my fun and beautiful family. If you do choose to apply, please know how much it means to me. I have had several moments of privately sobbing and equally as many moments of feeling too numb to respond. I don't know how to act in such a situation, but I do appreciate the consideration and the willingness to give of yourself for another.
If you decide to see if you'd be a good match as a donor, please use the QR code below. As you go through the process, you may be asked information regarding potential recipients. If I am that potential recipient, my legal name is Raymond Trosper and my birthday is 02/05/1970. Again, thank you and I love you.
Wednesday, March 9, 2022
World Kidney Day
Saturday, March 5, 2022
I'm Back! Let Me Tell You Why...
I'm Back! I doubt anybody reads this blog anymore, but I figure it's time to take it up again.
I'm sick. I've been sick for some time now. Some know this to one degree or another, but I have really tried to not make a big deal of it. It's been easy to not make a big deal of it, because, truthfully, I feel great! I don't feel sick. But I am. As I've come more face to face with this reality the last month, I've had several sleepless nights. I've filled much of that sleeplessness with reading about my sickness, what to expect, what my options are and how to navigate this whole ordeal. Something I read today at 3am made me realize I need to open up, share my story and ask for help. For this purpose I have turned here, and to social media and possibly to you directly.
I am in kidney failure. Here is my story.
I have been blessed with a few auto immune diseases in my life. I say "blessed" because I truly do count them as blessings. These diseases have taught me patience, understanding, humility, compassion and have helped me develop a high tolerance for pain and discomfort. These truly are blessings. Unfortunately, as I've dealt with rheumatoid arthritis and psoriatic arthritis for half my 52 year life, I spent about 21 years of that life digesting ibuprofen like they were TicTacs. Ibuprofen was the only thing that touched the pain, so it became something I relied on far more than I ever should have.
That damn Ibuprofen!
Ibuprofen, coupled with a steady diet of soda, took it's toll over time. Add to that a few years of high blood pressure (controlled for nearly 20 years now) and Type 2 diabetes (controlled now), only worsened the effects to my kidneys. Oddly enough, around 2013, I became serious about weight loss and shed 85 pounds by eliminating soda and fast food. I've been told my whole life that if I lost weight, my health would improve. Unfortunately, and possibly only a coincidence, that was not the case. About the time of this weight loss, I developed gout. Assuming for about a year it was just a major flare up of my arthritis, I doubled my already high ibuprofen intake to manage the pain. I and my doctor misdiagnosed the cause and assumed it could not be gout as I had recently eliminated those things that were often the main contributor to gout, but alas, it was indeed gout. While my gout and my arthritis are now controlled with medication and my blood pressure and type 2 diabetes are now controlled with diet, it has proven to be too little too late. The damage is done and my kidneys are shot.
I haven't had any pain killers of any sort in at least 3 years since I learned that I had entered stage 4 kidney failure. I still struggle back and forth with soda, but have mostly eliminated fast food, soda and processed foods from my diet. I still have some weight to lose, but have managed to only gain back 15-20 lbs of the 85 lbs I lost several years ago. But here I am, in stage 5 kidney failure. My spirits are good, mostly. I am not afraid for me, but I am afraid. Afraid of my options. Afraid for my Leah and Dax. Afraid for Sarah.
Options....
The first option was my option of choice initially and that is to do nothing. That has kind of been my plan since first learning about my kidney troubles. I figured I'd just drink more water and drag this out as long as I can go. I've done that and I'm not sure how much longer that will be an option. The positive thing is that I feel great. I really do. I think that may be another reason why I hesitate to be more open about this...I feel like a liar kind of. What I mean is, I don't feel like I look, act or feel like a person that is dying should look, act or feel like. I feel great! And for that I am so grateful. It could be worse, right? I could be dealing with all of this AND feeling awful, but I don't. Yes, I get fatigued sometime, but nowhere as much as what I'm told I should be experiencing. I have some swelling, some cramping, some kidney pain, but nothing that isn't manageable and, again, far less than what others in my situation are experiencing. God has been good to me and I continue to live life without much adjustment.
Unfortunately, now that I'm nearing final state renal failure, and truly faced with the reality of things, I can no longer consider doing nothing as an option. I love my kids and my wife and my life too much. I have tears as I type that. Sometimes as a man, you wonder if the life of those around you would be different at all without you, or even possibly better. I think that may be a natural thought process for anyone at one point or another when experiencing feelings of inadequacy, self disappointment or the like. However, when faced with the real prospect of it, it's nonsensical to consider. I know I'm not perfect, but I know I have more to do and more love to share and feel. I know I need more time to spend with those I love and more opportunity to work at reaching my divine potential.
Dialysis
Option 2 is dialysis. While dialysis has come a long way and offers some less intrusive options for at home hemodialysis, the more I read about it, the less I want to do it. It sounds unpleasant overall and would impact my lifestyle greatly. I'll spare you the details of how it works and the bummer ways that it would impact my life, but suffice it to say, it's not an option I want to exercise. I'm willing to go through with it if it is necessary, but simply put, I'd rather avoid it altogether. According to what I've read, it buys me time, but limited time. The average person lives 5-10 years on dialysis. That's a grim thought still. I realize some live longer, but some also live a shorter amount of time. I'll take whatever amount of time it could give me, should it come to that, but believe me, it doesn't sound like an option that builds hope as much as it simply delays the inevitable. I am grateful though for the technology and efforts of the medical world to make this available to those that need it, and me if it should come to that. I'm also grateful to have a Sister-in-Law, Erin, and niece, Hailey, that work in that field and are connected and supportive. So, I don't want to look a gift horse in the mouth, but I'm hoping for a better horse.
Transplant
I have more problems than just auto immune diseases and an addiction to soda. I also have a built in avoidance to doctors, hospitals and surgery. I've lived a risk-averse or careful and cautious life, all in the name of avoiding going to the Dr. For example, I removed my own wisdom tooth. Yes, I am that guy. Dentist visit every 13 years and only when needed. Doctors visit only when they threaten to hold back prescriptions until I come in. I'm sure their fine people, but I don't like them. And I don't mean that personally to any doctor I know, just the field and practice in general. I'm also not impressed with "big pharma" and how the government and medical field seems to be firmly planted in their pockets. At the same time, I recognize the blessing that doctors and pharmaceuticals have been in my life. When I was first prescribed immunosuppressing drugs about 15 years ago, it was life changing for me. I'm grateful for those prescriptions and the doctors that prescribed them...eternally grateful. Yet, at the same time, the quickdraw of the prescription pad always makes me nervous and my fear of prescription drugs still lingers. It is only overshadowed by my fear of going under the knife.
I'm at a point now that going under the knife for a kidney transplant is my best option. I now find myself wishing there was something as simple as a pill I could take to make this all go away, but nothing is as effective as the real thing and that is what I need....a real, but fully functioning, kidney. My nephrologist recently referred me for a kidney transplant. The average wait time for a cadaver kidney, or a kidney from a deceased donor, is about 3 years. That is 3 years of who knows what will happen in the meantime. The best option and faster option is to find a living donor that matches me for a live transplant. This brings up another problem I have...the ability to seek help from others. I'm a pretty self reliant person. I value those around me and the blessings they bring into my life, but I don't often ask for help. Sure, I might borrow a tool now and again, but I've not often at all asked for REAL HELP.
How awful is that?! That the first time I really am seeking help, it's such a big request. I guess that's why the Kidney Foundation has dubbed it, "The Big Ask. The Big Give". How do you really ask someone to give up a part of them for you. The thought of it is so humbling and a tearful concept to consider. As I couldn't sleep this morning, that is what I googled, "How do you ask someone for a kidney" and spent a couple hours reading about it. It encouraged me to share this whole thing with anybody that will read it. It's therapeutic if nothing else, but hopefully it raises some awareness too. I realized as I've studied that I may never see the transplant. I may not even qualify. I still have to endure what I've been told is an entire day of the most intense physical and slate of tests I'll ever undergo in my entire life...just to see if I can survive a transplant and would be a good candidate. If I am a viable candidate, and I'm fearful I am not, I still need to find or wait for a living or deceased donor that matches.
Awareness Can Save
This experience is new to me, mostly. My Brother Scott's Brother-in-Law, Randy, underwent a kidney transplant 8 years ago. I remember praying for the success of that operation for him and his donor wife, Tami. You don't tend to think about things like kidney transplant until it's something placed in front of you. I became somewhat aware of it when Randy went through it, but I wasn't close to Randy at that time and so my awareness found a limit. Now, as I am going through this process myself, I'm very aware of the need for donors and becoming more learned about the subject in general. Luckily, Randy has volunteered his help and support as I go through this and this is another HUGE blessing to me. As I've studied, I have been inspired to use the opportunity to not only help save my life, but to help others be aware of the need for donors. As people read this, they may or may not be a match for me, but they may certainly be a match for others. I've read countless stories of how deceased donors have saved so many lives in so many ways. I've read some truly inspiring stories of people donating kidneys in the hope of saving others that they don't even know in other parts of the world! What a true example of love and compassion and selflessness. It truly is inspirational.
I have learned from my mistakes, but also want to make myself available to those who want to avoid those same mistakes. If I can be helpful to others in the ways that so many of you have been to me, then this will be a blessing, just as my other trials have been. I watch and I learn. I am surrounded by loving and caring Fathers, Mothers, neighbors, coworkers, parishioners and more. I've been blessed with amazing parents and brothers. I have the most amazing partner in Sarah. There are no words to explain how amazing she is. I've married an awesome family along with her. I watch all of you. I learn from watching you. I see those traits in you that I wish in me. I've even learned from a few of your mistakes too. Thank you for being such blessings in my life. I truly am THE MOST BLESSED MAN.
Summary...So Far....
I don't know where this is going. A few of the sites I studied encouraged me to share my story and "put it out there". I don't know if I'll be a candidate for a transplant just yet. My journey in that regards is just beginning. I know one thing, I won't stop living and I won't stop being grateful for the life I've had and the time still remaining. Since taking all of this in, my priorities, perceptions and plans have changed and those too are in constant flux. I'll keep you informed of where I am in the process and appreciate the love and prayers of anybody willing to offer them. I feel great and fear that putting this out there will draw a reaction from others that will change how they deal with me or see me. I hope it doesn't. I do hope, however, that we all look for opportunities to help others that are in need of help that can't help themselves. I hope we remember to always consider that others may be going through things that we're not aware of and treat those around us with that thought in mind. The world now, needs love and compassion more than ever, it seems to me. I can do better. I will do better. I am still a work in progress.
Thank you for listening.
Sunday, February 28, 2021
Be Ye In the World, But Not Of the World
Parenting is hard. There are sleepless nights, dirty diapers, the pressure to provide the needs and wants of those you parent, and so many other things. Having only twelve years experience in the matter, I realize my children have...so far...made it relatively easy for me, but there is still a lifetime to go. I have been so blessed by God to be given the serious responsibility, along with my better half, to raise two beautiful, smart, creative and caring children. They are our children, but they are first God's children and he has entrusted us to raise them up to be good citizens, good neighbors, good Fathers, good Mothers and altogether good people.
We've been tasked to do so in such a way that shows them the path that will lead them to return to live with that loving God again someday. These days that means showing them how to identify and avoid the fiery darts of the adversary, such as addiction, depression, feelings of superiority, and thoughts of self-doubt. It also means teaching them to seek out truth, discern non-truth, avoid the entrapments of others, and the ability to then take that information and digest it, ponder it, pray about it and act accordingly upon it. It is this that has me most worried.
Truth is hard to find....well, truth is hard to find when we seek it from the most readily and easily accessible resources. We live in a world filled with untruth's gaslighting, partial truths and completely blatant lies. Media has infiltrated every facet of our lives, from our TVs, radios, internet, social media, printed advertisements and more. Sources that historically were relied upon as channels of truth that could be trusted without second consideration have been hijacked and manipulated for purposes of greed, indoctrination and gain; government, science, medicine, public schools, etc.
At this point, I might be teetering on the metaphorical fence of being one of those crazies that feels it's time to live off the grid, but I'm not sure I'd ever agree to do that. For one, I've learned to rely heavily on the Spirit of Discernment and trust the direction I receive. In other words, I'm learning to identify non-truths and have the courage to make right decisions, whether popular or not. Secondly, my children need to learn to do the same, which brings me to my first sentiment....Parenting is hard!
How does one parent effectively? By word and deed. It was how I was parented and feel my parents did a phenomenal job at it. I was taught by word and deed by both my Mother and my Father. I now must do the same. To take my children and move "off the grid" may accomplish the task of making them "not of the world", but simultaneously robs them of the experience of being in the world and thus choosing to be not of it. Afterall, it is my understanding that this is God's great plan; to experience life in all it's beauty and ugliness and to find and cherish beauty. It is to experience joy and pain, and work towards joy. It is to identify right and wrong and choose right.
I recently had a conversation with a dear friend wherein we discussed our philosophies on parenting. I admire he and his wife's parenting and appreciated his input. I related to him my understanding of The War in Heaven and how parenting has helped me see some wisdom in Satan's plan to remove the obstacle of free agency, thus preventing us from sinning and making wrong choices. As a parent, there are times when I want to lock my kids in a padded room away from disease or danger. As a parent, I'd like my kids to avoid stumbling and experiencing the ugliness, pain and suffering that comes with life and poor choices, but much more so, I see the wisdom and the love of God's plan. To let them experience those bad things from time to time with my guidance to experience them less than they would without my guidance, but they must have choice...I hope they choose correctly, but know they won't always. I also believe and hope they will make wiser choices on the heels of every failure. It's then that I'm grateful for the key to God's plan that is the atonement of His Son, to bridge the gap between sin, poor choices and negative experience.
This friend felt the same as I do, though practices the philosophy with a bit more faith and consistency I. He explained that in his home, the stairs leading to the basement don't have a gate protecting the child from falling. Of course, he being a loving Father, he makes sure he watches the child and places himself 2 to 3 steps down the stairs to limit the child's negative experience and chance of harm, but he lets the child fall. His thought is that a gate at home protects the child, but what about when the child is not at home and encounters stairs where a gate does not exist? What then? The negative experience, or failure, is a key component to the child's future success and avoidance of future danger. I recalled a time I had a similar experience with Leah.
Every time Leah wanted to use her scooter outside when she was 4-6 years old, I would have to stop her and send her first to put on shoes instead of sandals and to put on her helmet. Literally every time. I always want to protect her, but she seemed to never learn with me hovering around and stopping her from falling or making poor decisions. One time, the neighborhood kids were riding their scooters down the small hill in front of our home and Leah wanted to join them. My first instinct was to remind her, yet again, to put on shoes instead of sandals and to strap on a helmet. This time, before I could utter the instruction, the Spirit spoke to me and quietly said, "Let her fall". Reluctantly, I got on my bike and rode to visit with some neighbors who were sitting in front of their house visiting. When I got there, they offered me a chair to sit with them. I promptly explained that I couldn't because I was going to have to leave in a moment as Leah was going to fall. As they looked at me oddly, I heard kids gasp from the direction of the hill and saw other kids running towards the others. I politely got on my bike, said "goodbye" and rode off toward the direction of the drama to find Leah a bloody mess. She had fallen, as I knew she would, and suffered road rash on her toes, feet, legs, arm and face. I was grateful she was not seriously injured but also happy that she had gained this learning experience.
Letting kids fall and experience physical hurt is hard, but not nearly as hard in my mind as letting them experience mental, emotional or spiritual hurt. Mistakes of these kind can cost the soul and lead to spiritual and physical hurt beyond comprehension. These are the pitfalls I'm most concerned about. I'm not sure what my parents did to make me who I am today, but I'm grateful for it. When it comes to my beliefs, principles and philosophies, I'm not typically one who is concerned with how others feel about me and those things. Yes, I, like anyone else, is concerned with how I look and want others to perceive me as someone that has their life together, but when it comes to the things that really matter, I really don't care what others think. I've always tried to live my life for 3-4 people. In other words, if I can gain the approval of these 4 people in my life as I make decisions and live my life, that is all that matters. Those 4 people are; 1) My Heavenly Father, 2) Myself, 3) My Mother and from the time I was married, 4) My Wife. As I choose my beliefs and course of action, if God is happy with me, I'm happy with me, My Mom is happy with me and Sarah is happy with me, nothing else matters. Literally, I don't care what anybody else thinks.
Now, of course, I want people to like me. I want others to be happy with me, but at the end of the day, it doesn't matter. How do I instill this confidence and priority in my children to think the same way? It is becoming more and more difficult to do so. We live in a world that makes us feel like failures if we don't have this or that. We often equate approval with the number of likes, shares or comments. Our self worth and confidence teeters on what others think, and it's super easy to get society to like us. All we have to do is think like them. If we adopt the empty virtues of the masses and quote the talking heads that we are yelling at us from every direction, then we'll feel accepted and worthy. What if the talking heads are wrong? What if society strays? What then?
Now, more than ever, we need our children to be taught right from wrong and the things we know to be correct. We need to instill in them a TRUE self worth that they are Daughters and Sons of a loving Father in Heaven that wants them to inherit all that he has. We need to instill it in them in such a way that they know that this inheritance and the life that leads to it is far greater than the approval and acceptance of the rest of the world. The great deceiver has "filled the world with confusion...and the whole Earth groans under the weight of it's iniquity". So now, more than ever, is the time to stand confidently different and opposite to much of what the world is preaching. The world is preaching half truths, non-truths, manipulated truths and completely cancelling or omitting truths in an effort to deceive and drag our children asunder.
"It is imperative that we should be brought to stand" against all that is not of God and to do so with faith and pride that we are on the Lord's side. We need to embrace the moniker, "a peculiar person" and should want to be apart from the world. We need to stop blindly trusting those who are "learned" and think themselves "wise", but "hearken not to the counsel of God". We need our children to learn to recognize those that are learned are not to be automatically accepted as wise, but rather consider the very real possibility that "their wisdom is foolishness" and will not "profiteth them", but rather that they shall perish. "But to be learned is good if they hearken to the counsels of God". We need to teach our young ones to seek out the righteous and holy, and if the learned also be righteous and holy, that this does not "absolve them from appealing personally" to God for direction. Our position must always be that of following His will, not the will of the masses, society and those that intend to ensnare us. We must trust in the Lord and not in the arm of flesh.
It is not easy, to follow righteousness in an unpopular or unaccepted direction. In fact, sometimes, that opposition is a confirmation that our direction is right. We live in the times we've been warned of...when good shall be bad and right shall be wrong and light shall be dark, we are nearly at that point that knowing what is right will be easy to identify...just take a consensus of what the majority of society thinks and the opposite will be right. I don't know that we're there yet, but the trajectory we find ourselves on makes me believe we'll be there soon. When that day comes, I hope my Daughter and Son have the gift of discernment to recognize right from wrong, the strength to choose right even when it's not popular and the spine to do so in spite of those that scoff and scorn. In that day, I hope they are instilled with the faith and belief that they and God are truly a winning majority and that they find it easy to walk away from that which is not good.
There are so many beautiful things in this world, yet, it is an increasingly shittier world day by day. I hope my kids see in me the ability to embrace all that is beautiful and the efforts to leave the world a better place around me. The direction the world is going saddens me and I feel I can have little effect on it's trajectory, BUT I can have a great effect on the world directly around me. I can and will focus on those I can impact; my family, my children, my neighbors, my customers, and I hope my children see in me, and become themselves, beacons of brightness in an increasingly darkening world. I pray they may enjoy the world they're in, while simultaneously not becoming a product of it.
***To the two others that will read this in addition to my Mum, please understand that this is not an essay. It reads like a first draft because it is an original draft. I am simply recording some of my thoughts. Please forgive the typos and broken thoughts.
Monday, November 23, 2020
Color Me Grateful
I think the key to a happy life, is making the decision to be happy. Happiness is a choice. Positivity is a choice. I believe the key to both is gratitude, and being grateful is a choice as well. Some reading this may be thinking that being grateful is easier said than done. Initially, that certainly can be the case, but over time, and with practice, it becomes easier and easier until it is a natural thread woven in the tapestry of your life.
Some characteristics come natural, no doubt. While other characteristics, require a deliberate decision and persistent discipline. Much to the credit of my Mother and Father, I believe I have a positive attitude and an attitude of gratitude naturally within me, but I learned early on that I am happier and find it easier to be positive when I first focus on having gratitude. Here are a few tips I've implemented in my life that help me in this endeavor.
🙏Pray: Begin your day with prayer and end your day with prayer. Pray over your meals. Have a prayer in your heart throughout the day. Generally speaking, make the bulk of your prayers a recounting of the blessings you've received in your day and your life. Of course, there are times in your life wherein you spend your spiritual energy pleading with God for the things you need, but with regards to your regular daily correspondence with God, share with Him how grateful you are for all the wonderful things He's given you. E. Yoshihiko Kikuchi once counseled me to pray often, and if I ever find myself "not in the mood" to pray, pray anyways and begin by listing every possible blessing in my life. He promised me that if I did this, I would find myself filled with the spirit and desire to speak to Heavenly Father would be increased. I have practiced this ever since.
💯Count Your Blessings: This is paramount. I practice this in my daily life in several ways. First and foremost, since I was a youth of 18, I have been an avid journal writer. I ended every journal entry with a simple statement of something that I was thankful for. This caused me to end most days in thought of which of my many blessings I wanted to acknowledge and record that day. When you take the time to consider how you are blessed, you will find you are blessed more and more every day. Are you though? Does something magically change that brings you more blessings? No. The blessings were always there, but you've chosen to focus on them, making them your dominant thought.
🙈🙉🙊Discipline Your Thoughts: Mental mastery can be a difficult thing. The hardest part is recognizing the bad habit of negative thought or an attitude of ingratitude. Our mental frame of mind is always spiraling upwards or downwards; it rarely stands still, but is usually getting better or worse. If we can make it a habit to identify when we are ungrateful, negative or sitting on the pity pot, we can then stop ourselves with a simple inner conversation. Do not allow yourself to wallow in a miserable state of "woe is me", for it only gets worse. The moment you realize you might be slipping backwards, mentally stop yourself, turn yourself around and change your frame of mind.
💖Find happiness in what you have: Our world and society create a spirit of ungratefulness as we are bombarded with imagery and marketing that constantly tells us we are not good enough, we don't have enough, someone is better or someone has more. These messages and thoughts do not come from a loving Father in heaven, but rather from the natural man, which is the enemy of God. Rather than concerning yourself with what others may think or have, or comparing yourself to others, set your sights on personal goals that will bring those that are most important in your life. For me, for instance, I try to live my life so that I'm happy, my wife is happy, my Mother is happy and my Heavenly Father is happy with the choices I make. I know several people who seem to have it all...except true joy and happiness. A spirit of gratitude makes what you have, regardless of what you have, enough.
🍗Celebrate Thanksgiving: I love this time of year. Thanksgiving is my favorite time of year and not because of family, food or football. I love the spirit of gratefulness. I truly believe the more I express my gratitude to He who gives me everything, that He will reward that gratitude with more blessings bestowed upon me. What a wonderful concept to dedicate a whole day, a week or a month specifically to expressing our thanks! My family gets excited every November 1st as we bust out the Sharpie marker and take turns writing on our "Gratitude Pumpkin" those things we are grateful for. As we regularly express gratitude, it reinforces the positive habit that can carry on throughout the other 11 months of the year.
As you begin your journey to thankfulness, you will at times step backwards, but a quick recounting of the good in your life and a renewed effort to count your blessings, eliminate negative thoughts and seek prayerful support for your efforts, it will become easier. I'm sure we all know someone that seems to always be positive and lives their life with an attitude of gratitude. They certainly have hard times, experience trials or encounter set backs...they are not immune to these things, but they've made a choice to not let those trials, hard times or set backs deter them from a happy and grateful life. Surround yourself with those type of people and you will find it easier to be the same.
The prophet of my church, Russell M Nelson extended a challenge to the world to begin the journey towards a life of gratitude and happiness, and the key to this was simply to decide to be grateful and to share publicly that which you are grateful for. Listen to his message below and accept the challenge. He is a man of God and promises you great blessings as you do so. I know from my life that the habit of counting and sharing that which you are blessed with will result in increased blessings. I have been trying to avoid social media lately so I haven't participated in this challenge online, but I have renewed my commitment to continue this practice in my life and to teach my children to do so. I promise you this, if you can make thankfulness a focus in your life, you will be happier, you will have more and you will be a magnet of positivity and love.
Sunday, October 25, 2020
Spring Back? Way Back!
Here is another entry attempting to catch up. Spring of 2019 in a few photos.
Utah is so beautiful in Spring.
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| Easter Sunday |
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| Leah's 4th grade character was Sacagawea. She did a great job with her presentation as well as her class presentation. |
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| Leah and Dax love spending time with their Grandma Leslie. Almost as much as their Grandma Leslie likes spending time with them. |
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| This Spring we painted our house. We also painted our cabinets and stair railing, but that part was a regret. |
About 5 years ago, I set a goal to lose 100 lbs over a 5 year period. This Spring marked 5 years. I didn't quite hit my goal, but I did lose 85. Below is my before and after pic. I still have a way to go.
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| Before |
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| After |
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| Dax is reading like a mad man. He is such a smart dude. Here he is in kindergarten reading my book about Lincoln. He has to ask the meaning of some of the words, but he's reading them all. |
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| This Spring, Marley turned 4. That is 28 years in dog years. 28 years old and still no job and living at home. Sheesh! |
Leah has been in karate now for a few months. She loves it and seems to do well at it. I love to watch her confidence grow and her excitement for something. She earned her yellow belt this Spring and she was super stoked to advance. Karate has become part of her identity.
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| How I look on a video conference call. A different hat every time. |
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| If there is mud to be found, Dax will find it. |
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| Backside of Mt. Timpanogos |
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| One night when we were trying to figure out where to go eat as a family, we took votes and this was Dax's vote. "Breedose!!!" aka Burritos. |
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| Leah is sweet. She sometimes likes to wake up early and make us a pancake breakfast all by herself. Thistime she left us sweet notes. |
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| Leah was so cute when she realized she could, for the first time in her life, put her arms around me. I think this was the combined result of me losing weight and Leah getting bigger. |
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| As I said, if there is mud, Dax will find it. He found some mud somewhere by our house. |
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| On her own, Leah came up with the idea to draw some pictures, some with motivational sayings, and take them around the neighborhood to sell. She's a sweet girl with equally sweet neighbors. |
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| Late Spring means the Ice Shack is open. |
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| Spring in Utah is perfect for a day on the pitch. |
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| Leah and Dax made breakfast for their Mom on Mother's Day. |
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| Mother's Day Dinner with the 4 most important Mother's and future Mother in my life. And Dax. |
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| Dax explaining that his Uncool (Uncle) Scott is a motor patrol officer. |
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| He even brought his toy police car with him. |
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| We have a couple families of Yellow Breasted Warblers living in the trees of our front yard. They love the water fountain and have become quite comfortable with us around. |
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| Leah's group at the beginning of the trek. |
We went to a rodeo. We had a fun time, but my camera was almost dead, so I didn't get any pictures, which is a bummer. I rarely feel more American pride than at rodeos, so I like to take pictures to remind me of those things. I had to save my battery to take video of Dax mutton busting and Leah in the cash cow contest. Dax didn't last too long and he was disappointed as you can see below. I couldn't post Leah's contest because the video file was too large, but she did great. She ran hard and won a few bucks.
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| We finished off the Spring soccer season with our usual picnic, and soccer with the family activity, then we handed out the trophies. |
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| I wanted to coach this year, but felt it was too hard on Dax, so I played a supportive role. We didn't win any games, which was hard, but I learned a lot coaching with Ryan and Ted. They are both good coaches. Ryan's enthusiasm and postitive energy was perfect for Dax and Dax enjoyed the season. |
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| Dax is my little helper buddy. He loves to spend time with his Dad. I love to spend time with him. |
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| Dax was proud of his hard work. |
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| Make your own pizza night with Mad-Dawg, Mady. |
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| Good friendships never end. Mike Obrey and Kyle Kezos. |
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| For Daddy Daughter Date, we went to this dessert restaurant called Last Course. Leah had been wanting to go there for sometime. I'm glad we went when we did because it closed a few weeks after. |
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| We got to celebrate Kaydian's first birthday with her and her family. We are so blessed to have Caitlin and Kaydian in our lives. Leah loves Little Miss Kay so much. |
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| Leah completed her time at The Sharing Place. What a wonderful experience this was. It is such an awesome concept that helps so many. Here is Leah saying goodbye to her counselor. |
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| Leah having a spa day with her friends in the neighborhood. |
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| It wasn't all good. My good friend, Randy, moved across the pond for a new job in Merry Ole' England. |
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| There are certainly worse places in the world than Sand Hollow. |
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| This is about as far in the water as Sarah got this time. It was still early in the season so it the water hadn't quite warmed yet. |
































































































































































